Thanks - what a perfect solution for the new home we purchased yesterday. I went out and bought some like you suggested, so can safely use the walk-in shower and can de-prioritize (maybe eliminate) getting permanent bars in the wall. Brilliant!!! Any thoughts for the toilet? For now, one hand on the toilet seat & the other on the sink counter gets me up, but I don’t think that’s a permanent solution, and those suction things don’t work as they do in fiberglass. I appreciate any ideas!!!
Thanks - what a perfect solution for the new home we purchased yesterday. I went out and bought some like you suggested, so can safely use the walk-in shower and can de-prioritize (maybe eliminate) getting permanent bars in the wall. Brilliant!!! Any thoughts for the toilet? For now, one hand on the toilet seat & the other on the sink counter gets me up, but I don’t think that’s a permanent solution, and those suction things don’t work as they do in fiberglass. I appreciate any ideas!!!
A solution that has worked for me is to put my commode top—sans “bucket”—over the toilet, with the toilet seat up behind the commode. The handles on both sides of the commode top get me up onto my walker. John Bishop’s suggestion is good and designed for the purpose, but if you have a commode around still, that can work in the meantime.
I really like that. I used to have these things, hoping my handicap was temporary. In time, my husband grew frustrated with these things. Not in a mean way, but he didn’t want visitors to see these things, so we moved to things that looked more pleasant to him. I guess I wish these little things didn’t bother him, but he had to make a ton of lifestyle changes too when this thing hit me, so I let go of the portable things (except my walker and wheelchair). But I absolutely love that rail, so practical!
Thanks - what a perfect solution for the new home we purchased yesterday. I went out and bought some like you suggested, so can safely use the walk-in shower and can de-prioritize (maybe eliminate) getting permanent bars in the wall. Brilliant!!! Any thoughts for the toilet? For now, one hand on the toilet seat & the other on the sink counter gets me up, but I don’t think that’s a permanent solution, and those suction things don’t work as they do in fiberglass. I appreciate any ideas!!!
Debbie - my mom lived into her mid 90's with some disabilities, she did use what Mentor John posted. It worked out well for her. We also had a high toilet installed for her which enabled her to go into a stand position much easier not starting down so low at normal level. Best in your new house!!
I really like that. I used to have these things, hoping my handicap was temporary. In time, my husband grew frustrated with these things. Not in a mean way, but he didn’t want visitors to see these things, so we moved to things that looked more pleasant to him. I guess I wish these little things didn’t bother him, but he had to make a ton of lifestyle changes too when this thing hit me, so I let go of the portable things (except my walker and wheelchair). But I absolutely love that rail, so practical!
I had my bathroom adapted for senior and the best thing is my raised toilet with Japanese bidet.The heated toilet seat is great and just a push of a button washes me after toilet use.It even dries me.
Try having it affecting every sensory nerve in your body plus your autonomic system. Almost everyone who has peripheral neuropathy has it in their long nerves. Arms and legs. This is call non length-dependent small fiber neuropathy. Had it now 25 years and there’s not a damn thing they can do for it….believe me, we’ve tried it all.
Try having it affecting every sensory nerve in your body plus your autonomic system. Almost everyone who has peripheral neuropathy has it in their long nerves. Arms and legs. This is call non length-dependent small fiber neuropathy. Had it now 25 years and there’s not a damn thing they can do for it….believe me, we’ve tried it all.
I agree. It is extremely unfortunate that doctors, specialist, etc. are unable to heal peripheral neuropathy. The symptoms of peripheral neuropathy started with dumbness, pain and tingling including hurtful nerve needle strikes in the feet and started upwards to my hips.
I tried medications such as Gabapentin, and Januvia, etc. for years without any reliefs and cures. I have also spent thousands of dollars with the meds including many massagers, etc. with no relief. Now, I tried to convince myself that I will have to deal with the discomfort and pain the rest of my life.
Ultimately, I have accepted to live with the conditions...
Sad to say, peripheral neuropathy conditions is not curable and I will not spend another dollar with doctors, meds, etc.. as it is a waste of money!!!
I agree. It is extremely unfortunate that doctors, specialist, etc. are unable to heal peripheral neuropathy. The symptoms of peripheral neuropathy started with dumbness, pain and tingling including hurtful nerve needle strikes in the feet and started upwards to my hips.
I tried medications such as Gabapentin, and Januvia, etc. for years without any reliefs and cures. I have also spent thousands of dollars with the meds including many massagers, etc. with no relief. Now, I tried to convince myself that I will have to deal with the discomfort and pain the rest of my life.
Ultimately, I have accepted to live with the conditions...
Sad to say, peripheral neuropathy conditions is not curable and I will not spend another dollar with doctors, meds, etc.. as it is a waste of money!!!
Hi Michael, Welcome to Connect. I also have small fiber PN but only have the numbness, so no medications help with numbness. I shared my story and what has helped me in another discussion here - https://connect.mayoclinic.org/comment/310341/.
I also have accepted a new normal after being diagnosed with neuropathy but I still search and learn as much as I can about neuropathy and available treatments. I thought you might find these sites helpful.
I have been prescribed nortriptyline for my nerve pain. I tried Cymbalta but had terrible side effects. Wondering for those of you that have found success with nortriptyline for reducing nerve pain, how long after taking it have you felt some relief? I have been on it around 12 days. My pharmacist said it can take some time for it to work.
I've been on Gabapentin for many years for burning feet. It seems to work quite well. I still have the burning, but it no longer keeps me awake nights. The only side affect is drowsiness, however, I take it in the evening before bed, so it helps get to sleep.
I also take Ropinirole for Restless Leg Syndrome. The combination of the two may be working well for burning feet.
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I have a wall close to the toilet so I have a grab bar on that wall (opposite to the toilet paper wall) to use both sitting and getting up.
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3 ReactionsA solution that has worked for me is to put my commode top—sans “bucket”—over the toilet, with the toilet seat up behind the commode. The handles on both sides of the commode top get me up onto my walker. John Bishop’s suggestion is good and designed for the purpose, but if you have a commode around still, that can work in the meantime.
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2 ReactionsAnyone with SFN dealing with fatigue, low energy?
I really like that. I used to have these things, hoping my handicap was temporary. In time, my husband grew frustrated with these things. Not in a mean way, but he didn’t want visitors to see these things, so we moved to things that looked more pleasant to him. I guess I wish these little things didn’t bother him, but he had to make a ton of lifestyle changes too when this thing hit me, so I let go of the portable things (except my walker and wheelchair). But I absolutely love that rail, so practical!
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Helpful -
Hug
2 ReactionsDebbie - my mom lived into her mid 90's with some disabilities, she did use what Mentor John posted. It worked out well for her. We also had a high toilet installed for her which enabled her to go into a stand position much easier not starting down so low at normal level. Best in your new house!!
-
Like -
Helpful -
Hug
2 ReactionsI had my bathroom adapted for senior and the best thing is my raised toilet with Japanese bidet.The heated toilet seat is great and just a push of a button washes me after toilet use.It even dries me.
-
Like -
Helpful -
Hug
2 ReactionsTry having it affecting every sensory nerve in your body plus your autonomic system. Almost everyone who has peripheral neuropathy has it in their long nerves. Arms and legs. This is call non length-dependent small fiber neuropathy. Had it now 25 years and there’s not a damn thing they can do for it….believe me, we’ve tried it all.
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Like -
Helpful -
Hug
5 ReactionsI agree. It is extremely unfortunate that doctors, specialist, etc. are unable to heal peripheral neuropathy. The symptoms of peripheral neuropathy started with dumbness, pain and tingling including hurtful nerve needle strikes in the feet and started upwards to my hips.
I tried medications such as Gabapentin, and Januvia, etc. for years without any reliefs and cures. I have also spent thousands of dollars with the meds including many massagers, etc. with no relief. Now, I tried to convince myself that I will have to deal with the discomfort and pain the rest of my life.
Ultimately, I have accepted to live with the conditions...
Sad to say, peripheral neuropathy conditions is not curable and I will not spend another dollar with doctors, meds, etc.. as it is a waste of money!!!
Michael
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5 ReactionsHi Michael, Welcome to Connect. I also have small fiber PN but only have the numbness, so no medications help with numbness. I shared my story and what has helped me in another discussion here - https://connect.mayoclinic.org/comment/310341/.
I also have accepted a new normal after being diagnosed with neuropathy but I still search and learn as much as I can about neuropathy and available treatments. I thought you might find these sites helpful.
-- The Foundation for Peripheral Neuropathy has a list of treatments that have shown to help some folks with neuropathy: https://www.foundationforpn.org/treatments/.
-- Neuropathy Commons: https://neuropathycommons.org/.
It sounds like you've done some research on different treatments. How long have you been diagnosed with neuropathy?
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3 ReactionsI've been on Gabapentin for many years for burning feet. It seems to work quite well. I still have the burning, but it no longer keeps me awake nights. The only side affect is drowsiness, however, I take it in the evening before bed, so it helps get to sleep.
I also take Ropinirole for Restless Leg Syndrome. The combination of the two may be working well for burning feet.
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Like -
Helpful -
Hug
4 Reactions