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Essential Thrombocythemia (ET) and viruses

Blood Cancers & Disorders | Last Active: Dec 13, 2023 | Replies (53)

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@1995victoria

yes, my hemo didn't think my bone pain in shin and toes was from ET Jak2, but ????.I agree, Also breathlessness, but not cardio or pulmon.....and why did it just start?
I think we are in high risk group with supressed immunity. I don't think they know everything. ps....also nice support group on Facebook

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Replies to "yes, my hemo didn't think my bone pain in shin and toes was from ET Jak2,..."

Hi Victoria. My heart skipped a beat when I read your post, specifically about the "bone pain in shin". In 2022, joint pain went into overdrive. But in past 2 months, both shin bones are very painful even at night when trying to sleep. I haven't done anything different so no explanation there. I've told my Internist a few times. She ordered bone density = normal. I have severe iron deficiency anemia and get infusions every 3 months or so (unknown cause). I also have shortness of breath, but that's usually from IDA when my iron has crashed. The bone pain is worrisome! I'm used to joint pain with osteoarthritis but never bones. I need to Google your condition to see if it connects with some of my other symptoms. Ty for sharing. I would love to know more!