← Return to Essential Thrombocythemia (ET) and viruses
DiscussionEssential Thrombocythemia (ET) and viruses
Blood Cancers & Disorders | Last Active: Dec 13, 2023 | Replies (53)Comment receiving replies
Replies to "yes, my hemo didn't think my bone pain in shin and toes was from ET Jak2,..."
Hi Victoria. My heart skipped a beat when I read your post, specifically about the "bone pain in shin". In 2022, joint pain went into overdrive. But in past 2 months, both shin bones are very painful even at night when trying to sleep. I haven't done anything different so no explanation there. I've told my Internist a few times. She ordered bone density = normal. I have severe iron deficiency anemia and get infusions every 3 months or so (unknown cause). I also have shortness of breath, but that's usually from IDA when my iron has crashed. The bone pain is worrisome! I'm used to joint pain with osteoarthritis but never bones. I need to Google your condition to see if it connects with some of my other symptoms. Ty for sharing. I would love to know more!