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Symptoms throughout the day: A pattern is emerging
Post-COVID Recovery & COVID-19 | Last Active: Jan 23, 2023 | Replies (48)Comment receiving replies
I am sorry that Long Covid has had such a profound impact on you life. My experience, so far, pales in comparison. I posted on 1/18 about my current situation.
Questions: how did you find someone who practices holistic medicine? What is that person’s background? I prefer to find an MD, DO, PA, or ARNP…someone with traditional credentials who blends holistic with traditional.
How did you find a neurologist who takes Long Covid seriously? I am familiar with several neurologists in the area, who would not be a good match.
I have also found that shifting my lifestyle within my current limits is very helpful. I was stuck on being embarrassed about what I cannot do. My friends did not understand. I thought I was crazy. I am on a better track now. I have told my friends/local folk on a need to know basis. At least they now “get it” (kind of).
Thanks for your helpful comments. I wish you the best.
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Hello- Long Covid is a complex health condition and requires that attention. I joke that I was diagnosed with Long Covid- over a year and a half ago- before it was “cool”
Explaining/defending over and over again my heath condition became an invalidating cycle.
Let me first say that thanks to my therapist and np -they helped validate these emotions. Secondly, if a doctor does not listen to your symptoms and make you feel like a human being- I walk out.
Luckily I was referred my neurologist, but I have walked out of plenty doctors offices. Keep trying, read reviews and even talk to doctors office staff- many of them are experiencing Long Covid. The staff have first hand knowledge of the doctors in their office and who can help. Don’t give up.
Personally , I have severe anxiety and PTSD and a service dog. I inform any staff I speak with of my condition. I insist that they make a note when making a first appointment. I double check that the doctor is a good fit for me.
If you have a primary you trust- ask them for a referral.
I call my neurologist my angel- he said that Long Covid is hard for doctors since its new, they don't have answers, and are still discovering new aspects of the condition. Hoping you find someone soon.