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Mesenteric Panniculitis or Sclerosing Mesenteritis

Digestive Health | Last Active: Nov 6 8:25am | Replies (1517)

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@dmaquino

In May, I had a 10cm ovarian mass removed.... was cancerous but was contained.... I still had severe belly pain after several weeks..... my biopsies were sent to Harvard and Michigan because they were abnormal! I spent a week in the hospital June, July, and Aug with a second surgery that revealed an abscess on the outside of my colon...... treated w abx but as soon as meds stopped, pain returned.... surgeon started prednisone and referred to Cleveland Clinic for GI. Numerous invasive test all for inside of colon came back normal .... saw 2 more GI docs. No help.... I’ve had 8 ct scans since May .... saw new GI 3 weeks ago and she diagnosed from first biopsy... she said the mass had abnormal mesentery cells in it.... it also showed on all CT’s! No one really knows how to treat this from what I can see... we are being seen at Mayo fir Dr Pardi, who does see and treat this! Looking for relief as the pain is excruciating........

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Replies to "In May, I had a 10cm ovarian mass removed.... was cancerous but was contained.... I still..."

@dmaquino
Thank you for sharing more regarding the difficult time that you had finding a diagnosis. From other Connect Members, I have learned that this disorder is difficult to diagnose. I do understand that Mayo has some great treatments for this and other Members have found relief. I hope that this is your experience as well.

I would be interested in following your treatment. So as you are comfortable doing so, will you post again and let me know how you are doing after your appointment on the 20th and will you let me know if you find some relief?