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High platelet count: What does this mean?
Blood Cancers & Disorders | Last Active: Feb 11, 2023 | Replies (95)Comment receiving replies
I have to beg to differ because I don’t believe we’re in a no-win situation with the chemo meds we’re taking. While they can cause cancer or other issues, it’s not a given that they will.
In the meantime drugs buy us precious time that we may not have had otherwise. I’ve gained 4 years because of chemo and a bone marrow transplant. You wouldn’t believe the meds I took during the time of treatment. But I am here and enjoying every day to the fullest because those drugs helped me cheat death for a while longer. ☺️
I know it’s not easy with some of the side effects and the cost, but I really hope you find a good balance with your medications and they bring you a great quality of life!
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Glad your BMT was successful, Lori!
Of six cousins, three of us have had blood cancers. Two had SCT when they progressed to leukemias. One is doing okay six years later. The other died because his heart couldn't take the chemo and anti rejection drugs the transplant required. But he was in a situation where without the SCT he wouldn't make it, and he still had a boy at home.
I am so glad that this option is more widely available now. Due to my age and co-morbidities, it's not something I would pursue, but it has helped many people.
It's my sense that a lot of people with ET have doctors who are mismanaging things. They are making people sick with too much chemo up front, they are not providing good symptom management (often just denying that there even are symptoms), and are offering no support.
Anyone who feels hopeless deserves a better doctor and some emotional support. It makes me sad to see people with a treatable disease feeling so down.
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Lori,
So well said, Thank you. Eileen