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High platelet count: What does this mean?

Blood Cancers & Disorders | Last Active: Feb 11, 2023 | Replies (95)
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@darlaburley

I am on Hydro 500 mg, twice a day. Also Anagrelide HCL at 0.5 mg. These I am taking 5 times a day. I just feel that I am on chemo overload. I might be able to get the Pegasys injections though as I get funding for my chemo pills. When I was told that I had MDS, I took Revlimid. It was $19,000 a month and that was with a week off to give my liver a break. I got funding for most of it. I will see what my hemotologist says when I see her in 2 weeks.

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Replies to "I am on Hydro 500 mg, twice a day. Also Anagrelide HCL at 0.5 mg. These..."
darlaburley | @darlaburley | Jan 18, 2023

I believe we are in no win situation as all these drugs can cause other cancers and issues.

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eileen11108 | @eileen11108 | Jan 18, 2023

I cannot take Anagrelide as I have AFib. A side effect of it is palpitations. It sounds like you are on a very heavy dose of medications.

I have read a lot of reviews on Pegasys and the people seem to do better starting out on very low doses and building up.

This is such a confusing journey. Good luck, Eileen

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