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Lymphoma or Not? Watch and wait?

Blood Cancers & Disorders | Last Active: May 11, 2023 | Replies (13)

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@dringge

Yes the diagnosis of CLL really caught me off guard. I show no symptoms other than a high white cell count which was caught in a pre surgery physical. I had some vertebrae fused in my neck. Im 71 and relatively healthy and active. I was better prepared for my second appointment and asked a few questions and got answers. Its still hard to know what to expect and to question. I have to say that I think I am getting great information here.

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Replies to "Yes the diagnosis of CLL really caught me off guard. I show no symptoms other than..."

It’s wonderful to see you feel you’re getting great information here. 🙃 That’s the goal of this forum to help other members find answers, to offer encouragement and feel like you’re part of a larger family. I think it helps to feel you’re not alone in your new medical journey.

A little more information for you if you haven’t already seen this article from Mayo Clinic.
https://www.mayoclinic.org/diseases-conditions/chronic-lymphocytic-leukemia/symptoms-causes/syc-20352428
Another great source is the Leukemia and Lymphoma Society
https://www.lls.org/research/chronic-lymphocytic-leukemia-cll#:~:text=Chronic%20Lymphocytic%20Leukemia%20%28CLL%29%20Over%20the%20past%2010,of%20too%20many%20white%20blood%20cells%20called%20lymphocytes.
There are other members I’d like to introduce you to who also have CLL or family members who do. Their ongoing and current conversation is in the link below.
@alinatl @kellim @valeriewiegand @5gk @justinesmith

CLL leukemia: Just diagnosed, what can be done?
https://connect.mayoclinic.org/discussion/cll-leukemia/
Don’t hesitate to pop into any conversation to ask questions. If you see a discussion you’d like to reply to directly, make sure you click the ‘blue reply’ button or enter the person’s @name. That way they will get a notification that you’re responding to them.

I know it can be difficult in the watchful waiting” period. You might feel like it’s a ticking time bomb. I’d encourage you to let feeling that go. Don’t live in fear of the future! Go about every day as normal and enjoy life. You’re being monitored and if there are any changes, they will be caught early. You may be fortunate and never need treatment. But there are options if you do.

It’s great that you’re active! Don’t stop moving! 🙂
How is your neck from surgery?