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Celiac Artery Dissection (CAD)

Aortic Aneurysms | Last Active: 4 days ago | Replies (32)

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I too ended up in the ER for a sharp abdominal pain on my left side mostly and my upper central abdominal. 2 different reasons. A CT scanner showed I have a hematomas from my self-injecting shots for leveling up my blood thinner level.

It was way too low and it was in danger of having a stroke or heart attack from a blood clot as my blood was too thick and taking a long time to clot.

So these injections were added to my Coumadin. The hematoma formed as a result. I was bleeding in my abdomen.

Nothing they can do about that because it’s basically an internal bruise. Hard and very painful.

While there the CT scan showed that I had a torn celiac artery aneurysm. I knew about it from my yearly sonograms and for 3 years I was told by my cardiovascular surgeon that it wasn’t growing.

The hospital I went to said “you need to go to another hospital for emergency surgery” so they packed it up and put me into a big ER on wheels and off I went and the trauma hospital.

Long story short the surgeon acknowledged the tear and said that because it wasn’t bleeding there was “no need to admit you into the hospital tonight but you will need to come back to the hospital “

“See your cardiovascular surgeon ASAP first” I called him and I was told “we have an appointment set up for your yearly sonogram and I’ll see you in March” ( 3 months away!)!

I insisted that that was not acceptable and “I need to see you ASAP”. “All hospitals say that” (ASAP). and he finally caved in and we made an appointment for 2 days. He was literally annoyed by my insistence!

When I got there I had forgotten to bring my mask and halfway through the door she stopped me and rudely said “don’t you live in an assisted living facility? I said “yeah “ and she scolded me by yelling out that “shame on them for sending you here without a mask !”

I have 3 but just forgot to grab one. After filling out some paperwork a man came out and it was the sonogram guy. He did a sonogram and then I went into an exam room and my doctor came in and was making light of my issue the whole time I was there.

“We didn’t see any tears in your aneurysm” and I said that 2 surgeons seen it and you didn’t see any?” That’s when I said “could it bleed or burst?”
“It could but don’t worry about it, it’s no big deal”

He said that “we have treatment plans for a burst or bleeding aneurysm! “I’ll see you next year!” and walked out of the room.

I made next year’s appointment and walked out feeling like I’m a walking time bomb. It could burst he said but I know that a burst or bleeding aneurysm is an emergency and needs quick treatment. They are usually fatal in many cases.

This nutty doctor was annoyed clearly that I messed up his day with other patients and now I think I should get a second or third opinion. My insurance company said they had a list that I can pick from and my PCP was absolutely of no help as his answer was “ your cardiovascular Surgeon knows you better than anyone else”.
And we left it at that as I was on the phone and he rushed me off to attend to his other patients.

Am I being a hypochondriac or is a second opinion warranted?
I feel like I just got blown off by both doctors and I’m not one to whine.

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UPDATE: 2 years later.
My new cardiovascular surgeon did a complete aortic artery sonogram and he said that I had an aneurysm and it was at 3.9 cm with a tear in it! How can I go from “ I don’t see a torn aneurysm “ to two years later having one of 3.9 cm and torn? It was a different cardiovascular surgeon. As a result I have another meeting next month for another sonogram and then a follow up the following month after that. Why was he able to find it and the other cardiovascular surgeon said he didn’t see any. The one that said he didn’t see any was the one that was mad that I insisted that I have it checked. The one that rushed me through.
If you feel that something is not right and the doctor blows you off seek a second opinion.
Both are cardiovascular surgeons yet I get 2 different opinions. I feel that this new one is more professional and has good bedside manners. The first one who said he didn’t see any was a grouch insulted that I demanded an immediate appointment and not wait a month.

@andytheman I hope you find answers. I'm new to all of this. I have blood clotting disorder as well as celiac dissection. I'm afraid that I'll get passed round because dr.s just can't deal with one rare condition, let alone two. Good luck!