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CLL leukemia: Just diagnosed, what can be done?
Blood Cancers & Disorders | Last Active: Oct 25, 2023 | Replies (187)Comment receiving replies
Hi,
I just found this group and I like what I'm reading/seeing (as opposed to the International group, abbreviated as Health U.....) I'm new to this, (diagnosed 8/22, w & w, stage 0, and doing my best for right now by eating good & exercising daily. Would you please elaborate of getting connected with a CLL specialist, and how I would do that with Mayo Clinic? Previously I found that there's several CLL specialists in Texas, with the closest ones are in Dallas, (30 mi). Do most CLL patients have a regular hematologist / oncologist and also a CLL specialist? Thanks for the info...
Replies to "Hi, I just found this group and I like what I'm reading/seeing (as opposed to the..."
I can’t speak for “most” CLL patients. I use a specialist at Mayo exclusively for my blood issues. I’m sure many use a local hematologist and use a cancer center for a second opinion. To find experts go to cllsociety.org/newly-diagnosed/CLl-doctors/
There you can find all in your area. Specifically for Mayo, call 507-284-5363 or check Mayo website.
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Hi @skycountry, welcome to Mayo Connect. I’m happy you found us. We have quite a few members with CLL and they’ll be happy to offer their support and information. I’m guessing you’ve read through some of their stories already. CLL is generally slow to develop. People can go years without treatment.
If you’d like to request an appointment with one of the Mayo Clinic Campuses in Rochester, Phoenix or Jacksonville here is the link to contact the campus of your choice to initiate a visit. http://mayocl.in/1mtmR63
If you live in Texas and are near MD Anderson that would be another top tier cancer center you may want to try.
Most Hematologist/Oncologists are familiar with CLL and I’m not sure you need to have a another specialist. A hematologist oncologist is a specialist in blood cancers. There are some who do direct most of their research to the area. However, since this is slow to develop it gives you time to find a doctor you feel comfortable working with and trust.A second opinion is never a wasted trip.
How’s your current hematologist? Are you feeling satisfied or needing maybe a little more reassurance that you’re doing the right things at this time?