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Want to talk about Multiple Myeloma: Anyone else?

Blood Cancers & Disorders | Last Active: Jul 1, 2023 | Replies (401)
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@loribmt

Hi @eulo, I’m pretty familiar with stem cell transplantation from personal experience. I received an allogenic (donor cells) bone marrow transplant 3-1/2 years ago for Acute Myeloid Leukemia. I feel amazing, like nothing has ever happened.

I took a quick peek at one of your previous posts to see that your wife has MGUS. Has she been diagnosed with multiple myeloma? If it’s been recommended that she receive a SCT for MM, she may be allowed to use her own stem cells. That’s called an Auto or autologous transplant. That would be determined by the oncologist/hematologist transplant doctor.
There are similarities to the procedures with auto transplant generally a little easier…usually less pre-conditioning chemo, shorter recovery time because the cells are not foreign to the body. But both transplants are a chance at a new life and worth the effort. It’s not unusual the first few weeks for extreme fatigue, nausea and other side effects.

To help explain how a stem cell transplant works, Mayo Clinic has a great video you might be interested in reviewing. https://www.mayoclinic.org/tests-procedures/bone-marrow-transplant/multimedia/stem-cell-transplant/vid-20084647

Has a transplant been recommended for your wife?

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Replies to "Hi @eulo, I’m pretty familiar with stem cell transplantation from personal experience. I received an allogenic..."
eulo | @eulo | Jan 17, 2023

Hi Lori,
Thank for your answer.
Three years ago the Hematologist diagnosed muy wife whith MGUS, IgA Kappa.
Today her monoclonal spike is 0,38 g/dl.
Inmunoglobulin A 580 mg/dl
Light chain Kappa 366 mg/dl
Light chain Lambda 82 mg/dl
Kappa/Lambda 4.5
Free Kappa 781. g/l
Free Lambda 11.3 g/l
Free Kappa/Lambda 69.

During the three years blood tests every three months and according to the doctors she has not needed treatment.
This year she has had severe pain in her hands and had a carpal tunnel operation.
Now he also has those dark spots on his skin that you can see in the photos.
She suffers and I am very afraid of these symptoms even though the doctors say that there is no relation to the MGUS or its change to Multiple Myeloma.
What do you think of everything?
Thanks for everything.

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