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High platelet count: What does this mean?

Blood Cancers & Disorders | Last Active: Feb 11, 2023 | Replies (95)
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@eileen11108

Hi bikalydy973,
I have seen my GP every six months because I have hypertension. I have labs done before seeing him….platelets were shown on all labs. So it seems routine to me. I am 78 so on Medicare and it pays for labs with proper diagnosis codes.

I was puzzled about stopping thyroid medication.
I was put on Synthroid about 20 years ago because I had a goiter and many nodules…the endocrinologist told me once on it I cannot get off, It works in place of my thyroid working, I have since changed to a younger endocrinologist who said nothing about stopping it. Next time I see him I will ask.

I was diagnosed with ET JAK2 in 2022. I was started with 500 mg HU, had daily headaches. I am on a blood thinner for AFib so she was able to have me stop for a few weeks. I started again taking 500 mg HU every other day, Platelets are down to 434 so I am doing monthly labs to check count. I still get headaches but less,

I agree with you that I hate taking HU with all the possible short and long term side effects.

Best wishes to you, Eileen

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Replies to "Hi bikalydy973, I have seen my GP every six months because I have hypertension. I have..."
barblee973 | @blkalydy973 | Jan 18, 2023

Thank you Eileen, before all this occurred (ET, JAK2) I had been discussing with drs about reducing my meds… i.e. thyroid as I had been reading that long term use of Synthroid can lead to other health issues in old age…. I went off cytomel before this blood disorder was confirmed and with no negative effects. Dr said we would try taking me off the synthroid and then test for it in a couple of months. So not sure what the outcome will be. I would want to be off as many meds as possible while taking HU. This is a new Dr. I am seeing and when I asked her why the high platelet reading hadn’t been discovered before, the explanation she gave me was possibly it wasn’t called for in a routine blood test??? I haven’t had any surgeries for more than 10 years prior to the gall bladder surgery. Thanks for responding as I appreciate all the info I can get on this condition and best wishes to you too.

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