Anyone else have a Redundant / Tortuous Colon?

Yes, I had a redundant colon with loops and adhesions in my sigmoid colon. I had that portion of my colon removed. The surgery was easy in comparison to all the cramping I had been having with leg and back pain. I was in the hospital for three days and was healed in four weeks. The pain on my left side is gone now. My transverse colon is also redundant and I look forward to having it shortened. I have severe food sensitivities due to genetics, and over the years dealt with bouts of constipation, I believe it has caused this stretching. I had a lower GI with barium when I was in my early 20s and my colon position was normal. I am now 68. It is probably double in length now due to years of inflammation-causing stretching from gas build-up. I was diagnosed with ulcerative colitis and I know I have had it for years. I have included a recent CT scan with contrast demonstrating the pockets of gas that collect and the damage from the ulcers. The single scan shows the beginning of my sigmoid colon. You can also see the fusion of my spine I have had due to bone erosion, I believe this occurred from osteomyelitis in my maxilla bone due to tooth infections that drained into my sinus. The bone around the molars became infected.

I'm in the same boat. Lifelong constipation (I'm 55) and bloating. I was diagnosed after getting yelled by the nurse for not being sufficiently empty for my colonoscopy. I drank every drop, but it had a long way to go to reach the exit LOL. My GI doc said next time we'll start a week ahead of time rather than 2 days.

Intermittent fasting has improved my bowels considerably, and I really hope, respectfully, to never be in your shoes! No fun! Hang in there:)

Would like to hear more about the IF in re to your bowel issue.

I am getting a lot of help from drinking 1/2 glass of aloe vera gel on an empty stomach at bedtime. It reduces the inflammation in my colon and therefore, less gas, less pain and less constipation. The brand that I tolerate is Real Aloe Brand Gel. The skin in your colon is not that different from your outer skin. I remember it saved my husband after a colon resection. So decided to try it myself. Since we hear more and more about leaky gut, I think it makes sense to try something relatively benign. I was fairly crippled with colon pain for about a year. I hope it continues to work.

Not really sure what's happening, obviously not a doc, but it seems like the less food my LOOOOOONG colon has to process, the happier it is. I have an 8 hour eating window, then fast for 16. I vary the schedule occasionally. I'm about a month into it, and it's kinda life-changing. Dr. Mindy Peltz on youtube has tons of info.

I did a low-fiber diet for same reason. Still adhere to most of it. No greens, raw fruit except in smoothies, no raw veggies, no seeds, corn, no fibrous red meat. Basically, nothing hard to digest. I do feel better with less “bulk”. I’ll check into IF. Always looking to try anything that could help.

I have a very similar situation going on here. Mirada never worked well so I did a little research and discovered Enulose. It works! I have been in pretty bad shape to the point that I cannot have a BM on my own. Tortuous colon. I take 1/2 glass of Enulose every 3 days. I tried to take it daily as prescribed but it made me too gassy. I can deal with the quick effects of it twice a week. Best to schedule your day around it. I really don't want to live this way either. I feel a ER visit is in my future.

Hi Everyone
My daughter is 9, since she was 1 she has always had stomach pain and we always thought I was related to food. We finally got a doctor to listen to us and found out she has a tortuous colon she takes osmolax daily she has also been on so many diets aswell as antidepressants but we can still not get the pain to go away. Anyone have any ideas this little girl is such a trooper and just wants to feel better.

Treating a child is so much different than an adult I am at a loss. I live with a torturous colon. As a 60-year-old woman, it is more difficult to live with as I age but I really work at it. Not a big believer in psychiatric drugs but that is me. I deal with it by taking Miralax daily. I get a minimum of 20 hours of exercise a week. I pay strict attention to my diet. Fiber enhancements like Metamucil make it worse for me as it tends to just build up and not pass. As I get so much exercise, and take MiraLax, drinking electrolyte beverages daily is a biggie. I also take ZenWise pre-probiotic/enzyme with each meal. That has made a huge difference in controlling bloating which is painful and got rid of the stomach issues surrounding my lack of gallbladder. Is her bilirubin normal? Mine was very low for obvious reasons. I start each day with oatmeal and for lunch, I have an apple with peanut butter. More fruit for a snack and then a normal dinner. I cook as I live remotely in the mountains and avoid processed foods. My weight tends to be on the low side to normal. Good luck with your precious daughter. When they hurt, we hurt.

Is this the one you take?