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Cerebral Amyloid Angiopathy: My husband recently diagnosed

Caregivers: Dementia | Last Active: Oct 11, 2023 | Replies (13)
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@charleenboone

Hi. I am a mother and caregiver to my 31 year old who was diagnosed with CAA summer of 2022, after a stroke and simultaneous birth of her first and only baby. I am pretty sure there are a few tests like PET Scans and a way to measure amyloid B peptide...the only way to really know you have CAA. Every day, people well under forty..even early 20's are being diagnosed with Radiation induced CAA as little kids having cancer treatments. What I am saying is you have had a pretty good, long life and must be thankful and not be fearful. I am 72 and wish I could trade places with my daughter. But I am happy to hear so many of you "mature" folk have lived so long with this crap disease. My daughter's Neurologist said if he were me, he'd have her live her best life as possible.

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Replies to "Hi. I am a mother and caregiver to my 31 year old who was diagnosed with..."
Colleen Young, Connect Director | @colleenyoung | Jan 25, 2023

Welcome, @charleenboone. You're right that Cerebral Amyloid Angiopathy (CAA) is not reserved only for older people. I'm tagging fellow members like @nleejewell @staruk67 @nanatessie @purpleturtle @pericorudy @jamestitus @sistertwo @larryh123 @keithl56 and @shedwina to rejoin this discussion and share.

Charleen, it must be break your heart that you can't trade places with your daughter. It sounds like this isn't the first time you've had difficult medical circumstances. Did your daughter have cancer as a child?

How is that lovely grandchild of yours doing? Do both daughter and grandchild live with you?

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