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possible focal/partial or non-convulsive status epilepticus

Epilepsy & Seizures | Last Active: Jan 26, 2023 | Replies (26)
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@yossarion

I (71 yrs) have tens of focal seizures annualy and have experienced lightheadedness which I took for an impending seizure. This lhns wore off, so to say.

My (!) focals typically start with a sudden, unmistakable change in awareness. I freeze and stop communicating, stare with eyes open, make small repetitive movements (e.g. with one hand). I do not fall or loose balance and even keep walking (in silence) with my partner when outdoors. Recording events stops and when I regain conciousness (typically within 5 minutes) I have lost memory.

My (!) lightheadedness is mentioned as side-effect (Mayo) and peaks 90 minutes after taking 100 mg. Briviact. It tends to wear off, i.e. the old brain seems to get used to it and after a year of Briviact I mostly forget about it.

Wish you well, Tim

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Replies to "I (71 yrs) have tens of focal seizures annualy and have experienced lightheadedness which I took..."
Chris Gautier OR Santosha | @santosha | Jan 17, 2023

Hi Tim (@yossarion)

My focal seizures are very similar to yours (I have temporal lobe epilepsy). With AEDs (I have taken Lamictal, Tegretol, Trilpetal, Gabapentin and Vimpat), my seizures have reduced, but they became much stronger (started to have movements with one hand, stronger body contractions, loss of memory, headaches, had difficulty talking for almost one hour after the seizure and felt extremely tired ). Since I have been treated more naturally (CBD, gluten-free diet, yoga/meditation) by my current epileptologist, my seizures occur 2/3 times a month, but they have become much lighter. The movements on my hand during my seizures have disappeared, I have fewer body contractions, no headaches anymore, I am able to talk in a shorter period of time and I have less loss of memory. My day does not end anymore after having a seizure as it happened while I was being treated with those AEDs, thankfully.

A nice day to everyone!
Santosha

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