I was diagnosed with ET back in August following an emergency gall bladder operation. My platelets were 1,700! I had a bone marrow biopsy to confirm the diagnosis. Hematologist was questioning why my high count had not been discovered earlier and I questioned this with my new primary physician and she said platelet counts are not covered in routine blood test as most insurances don’t cover it unless given a reason for it.

I am in my 70’s and have been put on HU 2x a day 1000mg and low dose aspirin . Dr says I will be on it for life due to my age. My platelets are down to 330 range and holding. Side effects of HU so far have been minimal. I just wish there wasn’t a 10-page list of possible side effects and long term side effects!

I do not like being on meds and my primary has taken me off my thyroid meds - hypothyroidism- diagnosed 15 years ago. We will follow up in Feb to see how I am doing without them.

I do have confidence in my hematologist and would recommend if you are questioning your doctor, do seek a second opinion. As this is a blood disorder, a Hematologist would be best if that is available for you.