Initially, I was supposed to have mine taken out 6 months after transplant. Then COVID happened. So we waited until things calmed down a bit, and I had mine removed 2 years after transplant. My understanding was that 6 months was a good time. Recovery was much slower than I expected, and certainly longer than most other people I talked to that had a transplant. Again, I think PKD is its own beast. I took more like 6 months to feel better. Truthfully, I did not start to really feel good until they got my meds lowered a bit, and I had both PKD kidneys out of my body. Then I started to heal for real.

Everyone's body is different and so the process is different for everyone. But most of your symptoms sound familiar and yes, all of those (dizziness, weakness, breathlessness, and flank pain) got much better for me with time and once I was PKD free.

Sending Blessings!

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