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Mesenteric Panniculitis or Sclerosing Mesenteritis

Digestive Health | Last Active: Nov 6 8:25am | Replies (1517)

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@lisalucier

Hello, @jimbo91372. Welcome to Mayo Clinic Connect. I can see that you are concerned for your wife, and it's nice that you are looking into the best doctors for her recent diagnosis of messenteric panniculitis. So I'd like to invite @jolied @viva @pcfromfm @billindc @pcfromfm @dianajane @IndianaScott who may know of medical centers in the Chicago area to recommend for this disease or who may be just familiar with medical centers in that region in general that they might recommend.

In the meantime, you might be interested in reading this Mayo Clinic information on the disease: https://mayocl.in/2ObBGc8.

@jimbo91372 - what symptoms are the most bothersome for your wife currently?

@mpdx -- I also wanted to extend a welcome to you, as well as mention a few of the summary points you made from reading past posts in this discussion to see if any of the members I've tagged here or other members might have comments:
I have come away with the following:
1) sometimes autoimmune in nature and AIP diet can help
2) typical treatment involves prednisone or meloxican(m?)
3) lymphoma is sometimes/often(?) related (hate hearing this)
4) very few specialists in US (with Mayo – Pardi or Alexander- being leaders.)

When is your follow up with gastroenterology, @mpdx? How has the pain been?

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Replies to "Hello, @jimbo91372. Welcome to Mayo Clinic Connect. I can see that you are concerned for your..."

Hi. I am not interested in this illness. Sorry I may have misspoke or accidently replied. Good luck all.

Hi Lisa, thank you for the welcome! We are currently putting together a package to send to Mayo. She is most bothered by the “sick feeling” , and the cramping/ bloating . She says that the pain is not terrible it’s just non stop now for 7 months! She is on budesonide right now but we haven’t noticed a difference in her condition. Also a follow up MRI showed no significant changes.

Thanks for mentioning this is not a disease of interest to you, @dianajane. If you receive more emails notifying you of posts from this discussion, you may unsubscribe to just this discussion at the bottom of any email received.