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Mesenteric Panniculitis or Sclerosing Mesenteritis
Digestive Health | Last Active: Nov 6 8:25am | Replies (1517)Comment receiving replies
Hello, I was diagnosed with Sclerosing Mesenteritis in April after going to the ER with pain and vomiting. It was discovered with a CT scan and showed several nodules on my mesentery. I have seen a Gastrologist that has referred me to the research hospital. He said that they are the only people that will know how to treat this disease because it’s so rare. It is taking me months to get an appointment and I still have several weeks left before my appointment. I’m really concerned because I’m getting worse. I’ve taken prednisone and zofran for nausea. I’m looking for someone else who has been diagnosed and has more information on this disease. Also, I had gastric sleeve surgery in 2013 and I’m wondering if it is a cause for this disease. If anyone knows if it has been linked please let me know.
Replies to "Hello, I was diagnosed with Sclerosing Mesenteritis in April after going to the ER with pain..."
Same scenario here. Hard to get pain meds when so few people understand the disease. Darrell Pardi at Mayo is supposed to be the best. Met him once and what a nice guy! You're not alone and symptomatic treatment can really help..... It gets better. I did see a study one time that mentioned a link between Autoimmune disease and previous abdominal surgery but with so few people to study it's hard to make conclusions. I've had my gallbladder removed and have ankylosing spondylitis. Hang in there!
HI. I have had the sleeve gastrectomy too (November 2017) and have been wondering if this is what started it and if it is linked with SM/MP. I was just diagnosed in July with Mesenteric Panniculitis after going to ER with RUQ pain. I had my gallbladder taken out in March 2018 so I know it was not that. More worried about cardiac problems and found out I have this. I'm going to see a specialist at one of our academic hospitals in my area. If you find out anything please let em know, If I find out anything I will post and let you know.
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Hello Bill, glad to have you as part of the group. Your gastroenterologist in my opinion really did you a favor by referring you to a research hospital maybe they can find a way to help you. Then you can tell us all what they did for you because we are all hoping for a cure or at least a treatment. I suggest that you watch your diet. There are some foods that I'll probably never eat again. They send me on a sickness cycle that's horrific. So watch your diet and good luck at your appt. Viv