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← Return to MGUS + pulmonary sarcoidosis
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Blood Cancers & Disorders | Last Active: Jun 27, 2023 | Replies (16)
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Welcome, @suedavis313. We have several members here who have MGUS or pulmonary sarcoidosis. I've added this discussion to the Lung Cancer support group as well to see if any other members have both.
In the meantime, you may wish to also join these discussions:
- Pulmonary Sarcoidosis: How are you dealing with it? https://connect.mayoclinic.org/discussion/sarcoidosis-2c9d88/
- I'd like to connect with other MGUS people https://connect.mayoclinic.org/discussion/mgus-diagnosis-1/
Replies to "Welcome, @suedavis313. We have several members here who have MGUS or pulmonary sarcoidosis. I've added this..."
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Finally found someone else with same issues. Diagnosed with MGUS 2017, and Pulmonary Sarcoidosis Oct. 2022....seeing Hematology and Rheumatology concurrently. None of the treatments seem to help. However the Steroids seem to help with some of the neurological issues I have. Lots of pain, discomfort, and just feeling bad. WHEN it starts it seems to get worse quickly. Hoping for something that may help soon. Hydroxychloroquine keeps me awake, and can't tell if that helps or not. So just having in their day by day, managing most of it with pain medication. Hang in there, one day at a time seems to be the only way.