Need advice: Stage 2 pancreatic cancer

My mom was dx with stage 2b pancreatic adenocarcinoma in 2019. The gold standard these days is to start chemo and radiation upfront before the Whipple (to avoid rogue cancer cells from spreading and to shrink the tumor--for some this is important bc there is vein/artery involvement. The first line of defense is FOLFIRNOX. After 2 infusions, my mom got VERY sick. Turns out she has something called Gilbert's Syndrome which has something to do with bilirubin and it cannot break down the Irinotican in the FOLFIRNOX cocktail. After 5 weeks in the hospital and a month in rehab recovering from toxicity, she was placed on Gemzar/Abraxane which was a walk in the park compared to FOLFIRNOX. That September she had a successful Whipple and we were told they got "all the cancer they could see." It was the best case scenario. My mom is diabetic (actually dx prior to finding the tumor on the pancreas, which was found totally by accident after a GI CT for diverticulitis), but otherwise takes no Creon and lives life normally. She gets fatigued quite easily and has some residual neuropathy from chemo, but that's it. Just as she was to celebrate 3 years NED (no evidence of disease), she was told a tumor was found on her left ovary which was protruding the wall of her bladder. We were devastated. Since then, we've been told "there is stage IV and then there is stage IV and we can beat this down!" To a surgeon telling her, "We cannot do surgery, it won't make a difference, this is in your system now and we're starting you on palliative care," to "OMG I cannot believe you were told that, we are no where near you needing palliative care. You're going back on chemo, having radiation to the area and perhaps clean up surgery." Whatever the case, we are cautiously optimistic and we now this isn't a cure. Maybe she can back into remission long enough for immunotherapy to come along and cure this sticking cancer! Maybe not. My mom also contacted PanCan (a wonderful resource) and found out she is eligible for a clinical trial right at the hospital she has been being treated at! So, long story longer, here is my advice:
1) You MUST get your mom to a high-volume Cancer Center that does a TON of Whipple procedures, has skilled surgeons and oncologists who are willing to think outside the box and try anything and everything
2) Take care of yourself. You cannot pour from an empty cup. Get help for yourself. I got therapy to deal with the stress and anticipatory grief. Get on meds if you need to (no shame).
3) Have your mom (or you) call PanCan to see what clinical trials your mom may be eligible for
4) Have them do genetic testing on the tumor - there are drugs that are helping those with specific genetic mutations and having great success.
5) This will be a marathon, not a sprint. You will hear good news, bad news, confusing news, etc. One day you will be riding high from a hopeful point of view, to lowest of the low due to a wonky scan. This is normal. Give yourself grace.
6) You are not alone. You have us here on this site and there are many others, but STAY OFF THE INTERNET as a means of getting medical information. Understand that many of those statistics are over five years old and are now irrelevant.
7) Your mom is a statistic of one! There is hope.

Good luck and hang in there. It's a bumpy ride.

Your story is an inspiration

I feel like this is my job now- to help others going through this journey and help them know that we can always have hope! The 5 year survival rate has DOUBLED in the past 10 years. This is still not enough though, and I am determined to help spread knowledge, optimism and maintain my faith in God and how He and the many prayers of people (some I don’t even know) have helped me through the past 3+ years. I am thankful everyday!

We have stage 3, but are doing Mistletoe self injections (BelieveBig.org), Dog Dewormer, some high dose of Vit C IV's, a Rife machine, as well as Chemo Therapy, and are now gearing up to do an Oral Chemo with Radiation. Our cancer has been "stable" which we have learned is good...Compared to it Increasing!

I was diagnosed on June 13,2022 with pancreatic cancer. I was hospitalized and had the Whipple procedure at the end of June. Made it thru surgery with no problems, pain or complications.
Started chemo one month latter. After 6 of 12 chemo sessions developed severe diarrhea and dehydration. Took a one month chemo break and one less drugs of the four I was receiving.
Back at chemo doing three drugs and doing good. Three more chemo treatments to go. Have a scan in a little Iverson a week comming up. Others gave been fine.
CA 19 -9 test keep dropping.
Was diagnosed stage 3 cause some lymph nodes were found.
Best of luck and prayers for you all.

Here's wishing you the best as you go through your chemo.