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High platelet count: What does this mean?

Blood Cancers & Disorders | Last Active: Feb 11, 2023 | Replies (95)
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@darlaburley

I intially had MDS but after a bone marrow biopsy, it was found I didn't have it anymore. Why? My doctor can't explain it either. Now she says I have Thrombocytoses. My platelets run from 500 to 700. I'm on Hydro and Angrelide. I get blood tests every 2 weeks. Two weeks ago my platelets were 330. Now, two weeks later, they are 550. Why? I'm am wondering about the machine that reads the blood. I have read that the machines can sometimes read something else and marks it as platelets. The meds make me feel awful. She claims she doesn't know what else to do for me. Does anyone out there have an alternative med you take? Everytime I see her (every 2 months) she tells me I could have a stroke or heart attack. I am aware of that but I wonder if she has consulted with any other physicians in her practice.

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Replies to "I intially had MDS but after a bone marrow biopsy, it was found I didn't have..."
inevanmac | @inevanmac | Jan 16, 2023

Has your GP suggested you see a hematologist perhaps?

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eileen11108 | @eileen11108 | Jan 16, 2023

I sincerely hope you make an appointment with an MPN specialist. Are you taking low dose aspirin or blood thinner?

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nohrt4me | @nohrt4me | Jan 16, 2023

I'm so sorry. This must feel like you are getting the runaround. I hope you are in a position to get a second opinion.

I have to wonder if maybe the MDS was a misdiagnosis. Some of these blood cancers and disorders are tricky.

I also have to wonder why your doc feels you need both anagrelide and hydroxyurea. Dad (who also had ET) was on both meds, but only because a) his platelets were over 1,000 and b) hydroxy alone wasn't reducing them enough. He eventually was on only hydroxy.

There are other factors that affect stroke risk, such as your age, the mutation that's causing the ET, and whether you have ever had a clot before. You might ask your doctor if, given those factors, you could try going off one of the meds.

You might also ask your doc if taking a daily baby aspirin daily would help reduce stroke risk so you don't have to take so much of the other stuff.

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