Pancreatic NF-NET stable since 2005 - surgery or not?

Posted by benr @benr, Mar 18, 2019

Hello the NET community, I am a 63 yr old male with generally good health and BMI. About a year and half ago I had a CT scan for another reason but the radiologist discovered a 2cm mass in my pancreas that looked like a pNET. After further imaging studies such as Ga-68, MRI (with Eovist contrast), endoscopic US (without FNA) the diagnosis was confirmed. It is a non-functional NET in the body of the pancreas and I have no related symptoms and no visible metastasis. I went back to 2005 and retrieved some old CT scans and sure enough it was there back then and was maybe 3-4 mm smaller. I have also monitored it in the past year and a half and it's still stable. Also, blood markers did not show anything specific or of concern. I have seen 5 GI surgeons and 4 of them strongly recommend taking it out using distal pancreatactomy. They would remove about half of the pancreas and there is a small chance that I would develop diabetes and possibly needing digestive enzymes. The last surgeon along with a couple of GI medical ecologists are comfortable with monitoring it every 6 months and so far I have agreed with them. I am wondering if anyone in the NET community has had a similar condition and what their thoughts would be.about surgery or not. Thanks much.
Ben

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

Hi,
I also have Neuroendocrine of in the body pancreas along with small spots on my liver. I’m going on two years of chemo treatments. Hope your doing well and would love to hear if you have any updates on what they have done for you. Sending my prayers. 🙏🏻

REPLY
Please sign in or register to post a reply.