Patty,
I was diagnosed 1 1/2 yrs. ago and have been through initial treatment and just had stem cell transplant in October.
I have found that you have to be your own advocate if your not getting the response you are looking for. Here are a couple of suggestions:

1- Do your own research as much as you can. The mayo clinc, multiple myeloma .org., American cancer society etc.. This will assist you in arming yourself with some knowledge of the disease.

2- Use this knowledge to ask questions regarding treatment, side effects, next steps. I use to show up to my monthly appointments with the oncologist with a list of questions that I had.

3- I was lucky enough to be able to go to the Mayo Clinic and get a second opinion on treatment and my local team was more than willing to work with them if any suggestions were different for treatment. ( I was happy to find out that they were both on the came page).

4- My biggest issue was that my family doctor failed to diagnose my early symptoms. I assumed all bases were being covered and did not push the issue when I progressively got worse. I was in stage 2 out of 3 by time it was found by a neuro surgeon after multiple fractures in my vertebrae.

Push the issue with your care team. Don’t settle for not being kept informed or receiving the proper treatment. I have been in remission since Nov.2021. Diagnosed in June of 2021.

Feel free to contact me if you need anymore information regarding my journey and any insight I may be able to provide.

Wishing you and your husband the best treatment and recovery possible!