← Return to Atypical Ductal Hyperplasia (ADH) and taking an AI like Anastrozole

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@hobo

ELLIEJK,
Oh man! I’m proud of you for being bold and getting in front of it. I’ve had numerous BC docor opinions. I had a lumpectomy scheduled on Tues. I cancelled it. I’m terrified to make the wrong choice but I’m TOTALLY 1000% with you!! I’m just afraid to make my final choice. May I ask if you are BRCA or chek2 positive? I’m chek2 positive and have dense breast tissue and biopsy showed ALH/bordering on LCIS. Genetic counselors tell me I have a 67% chance of BC in my lifetime factoring in everything. Doc#1 wants to do lumpectomy to ensure there’s not cancer. Then decide from there. Doctor # 2 wants a current MRI to see if there is anything else suspect before I decide which path to chose and understands why I strongly lean toward prophylactic double mastectomy. Did your docs advise your choice, or you (like me) don’t want to screw around and wait? I will do one or both surgeries. I know in my heart what I want to do as I have a high level of fear of reoccurrence of another area and possibly find it too late!! Do you have family and doctor support? I’m all over the place but leaning toward mastectomy. Any advice, or similar circumstance as me? Have you had the surgery yet? Did you do reconstruction at the same time? I’m so appreciative of your words. Also, did your insurance approve? I haven’t explored that part yet. Not that it’s all about money—but it does factor into my decision. I’m not sure if I would have to have lumpectomy before they’d approve double mast.

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Replies to "ELLIEJK, Oh man! I’m proud of you for being bold and getting in front of it...."

I had lumpectomy to rule out any hidden cancers and thank God none were found. I’m not BRCA positive but have strong family history which puts my risk very similar to yours. Met with an oncologist last week and walked her through my logic- drugs are inconclusive on helping ADH and the side effects are awful so I don’t want that. Don’t want to just wait and see and she said she thought I was making a solid choice. Meet with reconstruction surgeon next week. So far all docs supportive and basically have said that patients make the best decisions for themselves. Insurance shouldn’t be a barrier given my high risk is what I’ve been told.