Mass on lung and lymph nodes

Hi Angela how are you doing ?

Hi Maureen,
I got home a while ago. It wasn't that bad at all, it's more just scary because you know what they're looking for and it takes so long. They take you in a room and get you really comfortable and then they give you an IV and quickly put that liquid in, and then you just sitting there for an hour. They come and get you and then you have you lay down and then they do what's similar to a CT scan except it's a lot quieter, and it goes down your body like it stops every little bit down your whole body. It takes about 25 minutes to do that, then you're done. Other than that I feel better today, at least my fever is gone now. That's all I need now is to be sick! I still feel like somebody punched me in my ribs on that side though when I take a deep breath but I wonder if that has something to do with them giving me that iron yesterday because it was shortly after that I started feeling this in my lung. But it'll be okay it's not as bad as it seems. Now it's just a waiting game for the results. I know my oncologist is supposed to call me next week Tuesday, or Wednesday. I have a EGD and sigmoidoscopy scheduled on Tuesday. That's at noon it'll take an hour and a half. Then I have two IV infusion schedule next week... I guess just one thing at a time until we know what we're doing with and I can find out what the treatment is going to be. How are you doing? How are you feeling? I hope you're trying to think a little positively. And I should tell myself the same, and I do try to think positive. I really do. It's hard though. I do know that there's a lot that can do now though. Miracles happen every day! I rented a room at a water park hotel on Sunday because my granddaughter doesn't have school Monday. So at least we're going to go check in early and I'm going to let her swim on Sunday and then I'll have to take her to daycare on Monday around noon so I can go get this infusion done. I hope you're going to try to do something to stay busy over the weekend, and I know you have your scan tomorrow. That's a couple hours out of your day and then you'll probably be hungry too so try to get something to eat after! But I've been thinking about you. I told my mom about you today and how we have so much in common in a lot of ways with things. I hope you get this message I hit the view and reply button I don't know what I did last time that you didn't get my message. I sent you a message the other night too that I was so sick, I had a fever and everything. But maybe you didn't get that either. I don't know anymore! Let me know if you got this)

Hi Angela, yes this time I got your message in my inbox. I’m glad you got your PET scan out of the way. I’m not too afraid of having mine done tomorrow - other than knowing what they are looking for (like you said). Monday will be rough getting the biopsy done, but at least they are putting me to sleep for it. I don’t know what the EGD and sigmoidoscopy is? Is that part of your regular check ups? I’m glad you have something fun planned with grand- daughter this weekend! Try to take things one day at a time. That’s what I’m trying to do. Otherwise just overwhelming.

Yes the signoscopy and the EDG is part of my regular yearly checkups. These are things that they do every year, because of the Lynch syndrome and because I don't have a colon they just have to go up and check that pouch and make sure there's no polyps or anything. It was over a year ago I had one, and I actually think the EDG may have been 3 years. But maybe not. I can't remember things anymore, because when they do it they put me under. I'm really glad you're getting your biopsy done right away though. I have to wait to get mine done because my pulmonary doctors out of the office all next week and I don't even meet with him until the 25th. But when my cancer doctor gets back on Tuesday he'll call me and then I'm going to find out what pulmonologist he wants me to go to. I'd rather go to someone that he recommends because I have an excellent oncologist. If he says to go with this guy I will but if he says that he'd rather have me see someone else I will. But I'm glad you're feeling positive or as good as you can feel about tomorrow because it's actually pretty relaxing there's nothing scary except for what they're looking for. I fell asleep in there although it wasn't peaceful. Haha but just keep a good attitude and try to have a nice weekend no matter what. But let me know how things go tomorrow!

Good Morning, the PET scan went ok. Now the hard parts - biopsy Monday morning and results a few days later. Please keep me in your prayers 🙏

You are very lucky you're getting that biopsy done right away. I wish that was happening with me! So consider yourself blessed with that, you're going to know sooner and you can start something sooner. Think positive and I'm thinking about you! Have faith! Remember Faith leaps over the fire!) Also the other night I was not feeling good at all but I had read one of your responses to me about you believing in the afterlife, and that we go on somehow. And I also believe in that not because I'm really religious or anything like that, I'm not. But my grandma had an experience shortly after her mother died that was so profound and I had her tell me that story many times throughout her life. She was 60 when I was born she died when I was about 26. She never drank, never smoked, and worked at Uniroyale for many years. In the late 40s her mom had died. At the time she was living in Eau Claire and her sister was living in Rice lake., and a couple nights after her mom died she was laying in bed with her niece which was about 2 years old at the time. In the middle of the night her niece kicked her so hard that it woke her up and she said it was like someone was holding a reciever to her ear and she could hear her sister clear as day say "Mama, are you happy mama?" My grandma thought, poor thing, she expects to get an answer....And as soon as she thought that she said she could feel herself crash through the ceiling! She said she literally felt herself go through the layers of the ceiling and could hear it as well she said it was so loud. When she opened her eyes, there were colors that were not colors of this earth, she said there was a huge chassis and she knew that she could not get to the other side but she knew her mother was on the other side, and it was bright, like a warm sunshine. She couldn't see her mother or her sister. She knew her sister was next to her, and her mother in front of her. Her mother said yes it's beautiful here, why don't you come here too.?!! At this time my grandma thought that she was eavesdropping on a conversation and she shouldn't be there, like she didn't understand why she was hearing this conversation between them. But then, as soon as she thought that her mother said to her "You too!". And all this communication of course was telepathic. And then both of them said we have kids to take care of but our time will come soon and she said to them both, "Oh YES! Later then!", which is something she always said in life. And my grandma said that it was just beautiful and peaceful and she knew something very special was happening. Anyway right after that she said she felt herself crash back down through the ceiling and she literally felt herself like come back into the bed like it shook the bed she said. A couple days later she was talking to her sister who lived in Rice Lake, and back then in the 1940s so you didn't talk to people everyday, but when they did talk her sister, Gladys, said "You know, I talked to Mama?" And my grandma said, "Yes I know, I was there!" And as they talked about this experience it was the same for both of them except Gladys woke up that night and had said, Mama, are you happy mama? and as soon as she asks that she had grabbed a piece of paper and a pencil and she said it was as if someone was telling her what to write, like an automatic writing experience. And they actually use this poem that she wrote at their mother's funeral. I'm sure I have like the pamphlet around somewhere. I kept it in my purse for years and years until it fell apart. But she said that this was someone telling her what to write this wasn't something she thought of she said she couldn't even keep up with the writing. And the poem is this..
Mother

God knoweth best his will be done. Through faith in him your heart he won. He calls his own, we must not grieve when souls like yours his all receive.

He came to Earth each soul to save. He asked for nothing only gave. I'm content to know you're in his care, God's richest blessing sharing there.

We loved you much on Earth below, it seems so hard to let you go. Your work was done, your days were spent. God took you home, you are content.

Got answers prayers, you told us so, we watched your faith these past weeks grow. You felt his touch, you heard his voice. A gentle breeze then a quiet repose.

You love your own, you love us still. We must not fail to do his will. For in God's love is Hope and peace. His wondrous blessings never cease!

I see your smile, I hear your call. It does not seem you're gone at all. I'll wait in faith to hold your hand, we'll meet again in God's promised Land.
-Gladys Gerland

I also had an experience with my brother when he was dying. He kept asking where are Grandma went.. and she had been dead for many years by then. But he had obviously seen her very recently. If you have YouTube you should also go watch Anita Moorjani near death experience. She had stage 5 cancer, she had tumors the size of golf balls all over her spine and her neck, she was brought into the hospital in a coma in her last hours of life, had a profound near death experience and was told that if she chose to go back that she would be healed from her cancer within a very short period of time. And she was healed within 3 weeks they couldn't find any cancer in her body. There have been doctors all around the world that have flown to Hong Kong to look at her medical records to try to explain something that happened. But there is no explanation. But she is wonderful to listen to and if you listen to her near death experience it'll give you so much hope and so much peace. She has a YouTube channel and there's many places you can find her testimony about her near death experience. I hope you have a wonderful day today, and I hope some of these words I'm giving you are words of peace and encouragement for you.

I think I'm thinking of you!
Angela

I sent you a really long message, I don't know if I hit that viewing reply button I hope you get it, look below it's a really long message.!!)

Angela,
The story about your grandma and her sister is so beautiful and so is the poem ❤️. Im so glad you shared this with me. It came at a really good time as I’m having a melt down. These melt downs come out of the blue where I just start sobbing. I guess I just can’t believe this is happening to me and the stress is overwhelming. Not only that I’m in pain and have to take ibuprofen every 4/5 hours around the clock. I stilll haven’t looked at my brain MRI results but I feel certain it is there. Pain behind my eye, in my ear and shoulder, the coughing is not stop and keeps me awake all night. I need help.,,physically and emotionally. I know that you wish your biopsy was getting done sooner. For me I’ve been living in denial the past month and now I’m at the end of the road where it’s going to be done and within days I will have my diagnosis. I honestly feel like collapsing. I was raised Catholic but in early adulthood got off the beaten path and made a mess of my life. In the past few years I have reacquainted myself with God and even more so now, it’s really all I’m relying on. Thank you so much for staying in touch with me. You have no idea how much it means to me and helps me.
Did you get a message from me marked private? I went to your profile page and there is an option to send messages privately.
This message you sent me today did not come through my email. I had to dig for it. Can you see if you go to my profile if you can send a test private message? Or - when you send me something go to my last message I sent you and hit reply .
Thanks again for the poem - I will re read it over and over.

I will have to look at the message marked private! I hope I got it! I'm glad that I can be a little bit of help for you right now. It doesn't seem like a lot of people respond to post but that might be because we're in limbo right now. It's nice when someone reaches out and can give some words of encouragement and support. A lot of things in your head can make you feel certain ways. I know for a fact that this can happen because I've been doing it to myself. Today was the first day I felt some I decent, but I'm having a hard time breathing also. Like I can't take a deep breath without it feeling like somebody whacked me in my rib cage. Even if it is in other organs, they're going to start chemo right away and that goes throughout your whole entire body attacking the cancer cells, and sometimes they have to use that in combination with radiation and other things. Try to think about good things and try to watch some positive things, like go watch Anita Moorijani NDE! And go watch Jeff Olson's NDE, he lost his wife and his newborn son in a horrific car accident and he left his body too and he saw his wife in the middle of the air and she said you have to go back and take care of our other son. There was much more to the story than that but it is very touching and moving and a doctor in the ER saw his wife lingering over him and she looked at this ER doctor like thank you for helping him thank you for saving his life. Miracles happen every day! Every single day. The whole thing with being human is that we feel like we're going to miss out but one thing with people that have had ndes they realize that everything is the way it was always supposed to be, that there is no mistake. Now that's hard for me to get my head around too because I'm terrified! But I think that my spirituality in this regard, and years of reading NDEs really is helping me. I am not a Bible thumper, I don't believe in any set religion. I was also raise Catholic and even made to go to a Catholic school! Oh the horrors!! I believe that we are ALL eternal, spiritual beings. Each and everyone of us. When you're having these really bad times, try to go watch something or read something that is going to make you feel better because it will help!!! I I'm going to go see if that private message worked. That would be nice if that did work. And I hope you sleep good tonight!

Angela

I got my diagnosis today. Malignancy in right lower lobe and multiple surrounding lymph nodes. Not exactly what I wanted to hear. One good thing I guess is that the PET scan didn’t show it anywhere else. Also my initial CAT scan showed mass to be about 7 x7. Pet scan report shows 3x3. How can they be so different? I won’t know treatment plan until I see oncologist in two weeks. It’s day 3 after biopsy and still have a bit of sore throat and swallowing. Is that normal? Not sure what to do about pain management (lymph node pain) either until I see oncologist in two weeks. Ibuprofen helps but I’m taking 600-800 mg every 4/5 hours around the clock.