← Return to Need Help - Hematology won't do testing

Discussion

Need Help - Hematology won't do testing

Blood Cancers & Disorders | Last Active: Jan 30, 2023 | Replies (77)

Comment receiving replies
@sharonmb

It's sad to say but I would say it's the insurance company instead of your doctor. They will not pay if labs are normal and it's very expensive to pay out of pocket for a BMBX. I know how frustrating this must be for you. So sorry you are going through this. One thing I learned a long time ago as a nurse for 35 years, the patient knows themselves better than anyone and if you sense something is wrong...it usually is! Hang in there and don't stop fighting for your health.

Jump to this post


Replies to "It's sad to say but I would say it's the insurance company instead of your doctor...."

Thank you for encouragement, Sharon. I do understand the insurance factor. But I have also asked for bone density testing, which is 100% justified given that xrays and CT scans are showing significant worsening of osteoporosis over the past year. My right shoulder now drooping like a downhill ski slope and very noticeable to naked eye. Never had shoulder or ankle pain before 2022, but serious pain now. I also have developed peripheral neuropathy in both feet and calves. So, I changed primary to an internist 2 mos ago. She was shocked that I've never had bone biopsy before with an existing 10+ yr diagnosis of arthritis, that is rapidly worsening. Thankfully, I am having that test done in 2 days. Also, to the point about bloodwork results, there is the factor of which tests a physician orders. In my case, everything has been surface testing until my new doctor. She tested things I've never heard of, and found abnormalities. I am finally hopeful bc my new internist is clearly excellent but also digs to get to source. Thank you so much!

The first Oncologist didn't want to do the biopsy. He's only going to check my labs every 6 month. Doesn't seem interested in finding out the source of my anemia. The second one on the other hand did do the biopsy. It came back negative for cancer but thinks the source of the anemia is my kidneys. No definitive answer for my anemia. I have some answers but I still have more questions. I continue to research, and I most definitely ask questions to my specialists when something new pops up with what's happening with me.