I have prayed for 2 years to be able to go to the Mayo..but I have not been accepted and turned me down because of my insurance. I hsve been affected literally head to foot with e everything in between. Sadly, I had to apply for Disability. Irs a hard pill to swallow at 57. It started with stomach pain in mY of 21. 3 1/2 weeks later I came out with half my kidney that has infar Ted whi h means dead. I have chronic fatigue, depression, anxiety, severe tinnitus, lost a 1/4 of my hearing. I have an immune deficiency which has made it worse. My labs show I have various blood diseases that are shown to be indicators of Covid. Protein C, factor v. Factor v111, d dimer, igg deficiency which now I have to get weekly infusions. I have severe brain fog, tremors to where I almost can't write. I'm meeting with a neurosurgeon on Monday, I was told a few weeks ago I have 2 aneurysms 😳 I sleep about 3 hrs a night and have been told I have stage 2 esophogit6. Oddly enough I have adth6but have not even had to use my inhaler.
This has been the longest 2 yrs. My nephrologis recommended the May after my 2nd visit, DENIED, Then Barnes Jewush in st. Louis DENIED then National jewish in Denver. They have a top rating for immunology and asthma w a great Covid clinic. My dr put in referal in February of 22 and sounded promising. He put it as URGENT as all insurance companies and physicians know thT means a 62 hr response with an approval or denial. Well, let's just say 100 plus phone calls, my dr and nurse faxed and relaxed over 100 pages, broken promises etc. 4 in a half months later, ALMOST 5, I WAS DENIED. THIS SHOULD BE CONSIDERED ILLEGAL. THEY ARE AND HAVE BEEN HOLDING MY LIFE IN THEIR HANDS TO DECIDE IF IM WORTHY OF LIVING. All this has affected every aspect of my life and NOW in process of going on disability. I have no money, rental assistance from the state of kansas ended so sitting here worried every night ad I go to bed, of I will wake up. With my factor v111 disorder it is a far greater possibility of having a blood clot at any point. I follow Dr V's podcasts and read articles. He spoke about long haul cobid patients and how we have to treat like people gave long haul and then cross off symptoms because this will result in 1 out of 3 people going on disability. Well here I am. I just wonder where I would be had I got any help almost 2 years ago? It's quite sad. My kids are 20 and 21 away at college. I've raised them since 2013 on my own since their father passed away. I would like to think I could live plenty more years to see them grow. But I'm really questioning how long I have. Every month I'm in the er or hospital and they find more and more. My body is manifesting from inside out. Now have full blown psoriasiss. It's so bad I'm beginning to isolate. Half of my friends think I'm crazy or just lazy. Believe me I wouldn't wish this on anyone.