← Return to Polycythemia Vera: Just been diagnosed

Discussion

Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: Mar 20 8:31am | Replies (392)

Comment receiving replies
@raremiracle2

I was just diagnosed in Sept. 2022 (Hospitalized Sept 22-30 due to cellulitis) My numbers were the same, everything was high Nov.10-30 Hospitalized for cellulitis 2020 and doctor's missed my diagnosis until I landed in hospital again. This time doctor called hematologist; bone marrow biopsy and diagnosed with Myelofribrosis which is chronic myeloid leukemia. It's rare so the hospital missed it. Now we are trying to deal with my symptoms and treatment.

Jump to this post


Replies to "I was just diagnosed in Sept. 2022 (Hospitalized Sept 22-30 due to cellulitis) My numbers were..."

Hi @raremiracle2 Welcome to Mayo Connect! This is a wonderfully supportive forum. It helps when you find others who are going along the same medical journey so you’re not feeling quite so alone.
There are a number of discussions with members who have Chronic Myeloid Leukemia who are very encouraging with their experiences with CML.

I did find a free educational course that’s offered through Mayo Clinic for CML patients. It’s very informational and I encourage you to follow along.

– Chronic Myeloid Leukemia Patient Education Series https://mccmscontent.mayo.edu/LSC/ChronicMyeloidLeukemiaPatientEducation/content/index.html#/

Here are a several of the conversations you might like to join. Don’t hesitate to pop into any discussion and tag a member by tying in their @name. That way they’ll get a notification.
Chronic Myeloid Leukemia
https://connect.mayoclinic.org/discussion/chronic-myeloid-leukemia-1/

~~~
@ginlori0509 who was recently diagnosed with CML started this discussion. There are some good links in some of the replies.

Philadelphia chromosome: Anxiety awaiting diagnosis
https://connect.mayoclinic.org/discussion/anxiety-awaiting-diagnosis/
~~
I think this will be a really encouraging discussion with
@suzie71, who had been a CML survivor for over 20 years! You’ll also meet @babyjakejake @anglis @ericloomis and others who are on the same CML journey with you.

~I've had CML for 20 years and want to encourage others
https://connect.mayoclinic.org/discussion/chronic-myelogenous-leukemia-cml/

What are your symptoms and treatments for CML?