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Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: Dec 16 1:26pm | Replies (400)

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@raremiracle2

I was just diagnosed in Sept. 2022 (Hospitalized Sept 22-30 due to cellulitis) My numbers were the same, everything was high Nov.10-30 Hospitalized for cellulitis 2020 and doctor's missed my diagnosis until I landed in hospital again. This time doctor called hematologist; bone marrow biopsy and diagnosed with Myelofribrosis which is chronic myeloid leukemia. It's rare so the hospital missed it. Now we are trying to deal with my symptoms and treatment.

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Replies to "I was just diagnosed in Sept. 2022 (Hospitalized Sept 22-30 due to cellulitis) My numbers were..."

Hi @raremiracle2 Welcome to Mayo Connect! This is a wonderfully supportive forum. It helps when you find others who are going along the same medical journey so you’re not feeling quite so alone.
There are a number of discussions with members who have Chronic Myeloid Leukemia who are very encouraging with their experiences with CML.

I did find a free educational course that’s offered through Mayo Clinic for CML patients. It’s very informational and I encourage you to follow along.

– Chronic Myeloid Leukemia Patient Education Series https://mccmscontent.mayo.edu/LSC/ChronicMyeloidLeukemiaPatientEducation/content/index.html#/

Here are a several of the conversations you might like to join. Don’t hesitate to pop into any discussion and tag a member by tying in their @name. That way they’ll get a notification.
Chronic Myeloid Leukemia
https://connect.mayoclinic.org/discussion/chronic-myeloid-leukemia-1/
~~~
@ginlori0509 who was recently diagnosed with CML started this discussion. There are some good links in some of the replies.

Philadelphia chromosome: Anxiety awaiting diagnosis
https://connect.mayoclinic.org/discussion/anxiety-awaiting-diagnosis/
~~
I think this will be a really encouraging discussion with
@suzie71, who had been a CML survivor for over 20 years! You’ll also meet @babyjakejake @anglis @ericloomis and others who are on the same CML journey with you.

~I've had CML for 20 years and want to encourage others
https://connect.mayoclinic.org/discussion/chronic-myelogenous-leukemia-cml/
What are your symptoms and treatments for CML?