Hi Teresa, Thank you for your interest. One problem that delayed diagnosis of the tumor (for 2 years!)was that I have never had any symptoms; even the urine test for carcinoid syndrome was negative.
I just had my second shot; I’m scheduled for another January 31, then one on February 28 (will be the 4th shot); that day I’m scheduled for my second PET, and the doctor says he “expects to see no growth if not shrinkage” of the existing lesions.
I’m praying he is right and that the Lanreotide will work its magic. I will surely keep you updated. This group has been so helpful in lifting my spirits.
Oh, I am so pleased to hear that this group on Mayo Connect has been helpful in lifting your spirits, @roseflame! I look forward to getting to know you as you travel this NETs journey.
Is the doctor you are seeing a NET specialist? If not, have you consulted with a NET specialist?