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Mesenteric Panniculitis or Sclerosing Mesenteritis
Digestive Health | Last Active: Dec 4 5:59am | Replies (1518)Comment receiving replies
Hello, I have a couple of questions about Mesenteric Panniculitis. I was recently diagnosed with this disease after I was injured in my stomach at work. After about 2 weeks of pain I went in to get a ct scan and this showed up. They have done blood work, exrays and a catscan and it showed no tumors, cyst's or cancer. I just want to get a better understanding of this disease. I read that it is very rare and there aren't to many studies on it. So for the people who do have it, it would be very helpful to hear from you all.
1. Can I die from this disease?
2. Is there a special diet I have to follow?
3. Can I have this disease without having cancer?
4. When will the weight loss stop? Will I continue to loose weight until I'm all bones? (I've already lost 15 pounds, My brother just passed away from Pancreatic Cancer 3 weeks ago and seeing him suffer like that I'm sure affected my health and weight as well but I just don't want to end looking frail)
5. Besides Prendisone does anyone know of anything else I can take that would help?
6. Has anyone tried an all natural way of treating it (chemical free) if so what did they use and how effective was it?
Thank You,
Fernando Arce
I look forward to hearing from you.
Replies to "Hello, I have a couple of questions about Mesenteric Panniculitis. I was recently diagnosed with this..."
Good morning @nowbusiness123 ,
Your reference is to an individual that is a member of our Digestive Health, Mesenteric Panniculitis or Sclerosing Mesenteritis group.
How are you today?
@vdouglas
Von
Still losing my appetite now my neck is hurting can somebody tell me what else to expect from this disease
Good morning everyone!
I hope everyone had nice Christmas and excellent Boxing Day shopping! I was wondering if anyone has heard about the benefits of infrared saunas (even portable, more reasonably priced ones)? I have read that it can be good for patients with chronic illness and pain as well as flushing out stored toxins from medications....just wondering....is it too good to be true???
Hi @fernandoparce,
I can imagine how worried you must be, and I want to thank you for reaching out to the Connect community. Living with a chronic condition can be so difficult and frustrating. Here is some information about Sclerosing mesenteritis care at Mayo Clinic, which I would encourage you to read:
https://www.mayoclinic.org/diseases-conditions/sclerosing-mesenteritis/care-at-mayo-clinic/mac-2035509vdouglas
Thank you, @kimh, for your question about the benefits of infrared sauna therapy for chronic health conditions; here is Mayo Clinic's take on it: https://www.mayoclinic.org/healthy-lifestyle/consumer-health/expert-answers/infrared-sauna/faq-20057954
Hi @fernandoparce,
Hope you are feeling better today? I wanted to share this story with you; it's about a Mayo Clinic patient with the same condition, and how she has been managing her pain and other symptoms.
You can read the story by clicking on this link:
https://sharing.mayoclinic.org/2012/12/13/research-forges-path-to-effective-treatment-for-sclerosing-mesenteritis/
Please let us know how you are doing, and if you have any questions.
Connect
Welcome to Connect, nowbusiness123.
Fernando is another member who is participating in this discussion about Mesenteric Panniculitis and Sclerosing Mesenteritis. Because you are following this discussion, you will get an email notification each time a new post is made to the group discussion. In the message to which you replied, Lisa was responding to a message that Fernando posted.
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We look forward to getting to know you NowBusiness123. Do you have Mesenteric Panniculitis or Sclerosing Mesenteritis or another digestive issue that you'd like to talk about?