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Bland embolization or transarterial chemoembolization (TACE)

Neuroendocrine Tumors (NETs) | Last Active: Feb 7, 2023 | Replies (22)
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@roseflame

I had a liver tumor biopsy in October even though the doctors and I all knew it was a metastatic NET from an original small bowel tumor removed in 2018. Of course it confirmed that it was a NET, but the subsequent (and my first) PET scan showed wide spread of small tumors to spine and peritoneum.

Nothing “went wrong,” and in fact the resulting exam showed much more devastating spread than the doctors had expected. I started on Lanreotide and am hoping the growth of these many small metastases will be slowed.
I wish you good luck managing this scary disease.

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Replies to "I had a liver tumor biopsy in October even though the doctors and I all knew..."
Teresa, Volunteer Mentor | @hopeful33250 | Jan 11, 2023

Hello @roseflame and welcome to Mayo Connect. I appreciate you sharing your journey with NETs. You do not mention having symptoms of carcinoid syndrome but I'm wondering if this is a problem for you?

If you are comfortable sharing more, when did you begin the Lanreotide? Will you be having more scans during the next few months to see if the injections are helping?

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