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Body vibrations when falling asleep or waking?

Sleep Health | Last Active: 1 day ago | Replies (457)

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@aashiana

For all those wondering if this could be related to COVID and/or the COVID vaccines/boosters - the answer is a resounding YES. There are other causes of course, that need to be ruled out. However, I got COVID very early and researched these vibrations and tremors, and at the time absolutely nothing explained the specific pattern I was getting. Now, you can find it all over the place as an acknowledged long-COVID issue.

For me too, I had a rather severe onset, felt like I was being shaken out of bed, every surface felt like it was vibrating. In the absence of any reasonable explanation or access to hospitals (we were in lock-down at the time) I believed it was environmental. After a few months I realized it was systemic and I had almost 6 months of not sleeping except short crashes due to the severity of my physical responses during "sleep". Eventually i did learn to fall asleep into it for a few hours at a time, and my pattern since then has been internal buzzing and vibrations beginning while falling asleep and worsening the longer I sleep - so I wake up feeling terrible and disoriented, with a variety of sensory issues as well (tinnitus, strange smells, blurry vision, tongue and jaw vibrations). The vibrations can continue to a lesser extent during the day but seem to lessen with physical movement and mental focusing on something (anything) - work, games, movies, conversation.

Lots of neuro consults with little to show for it, from long-COVID clinics as well. Diagnosis with autonomia (not POTS), short-fiber neuropathy, probably glial cell activation. The good news (and there isn't much) is that all the sensory issues and peripheral neuropathy that come with this are reversible - they come and go as the CNS symptoms improve or worsen. So that's one worry off the plate. It is not ALS or MS or Parkinson's. More good news. Still, it's been three years. Lots and lots and lots of long-COVID people have this, and it is exacerbated by boosters. The consensus seems to be brain inflammation as well as general body inflammation causing CNS over-activation of the sympathetic (fight-or-flight) system. Given that it has recently been demonstrated that we have COVID reservoirs in various parts of our bodies (including nasal cavities, brain, gut, heart/lungs) it is not that surprising I guess that our bodies are still "fighting".

About the only thing that helps is anything to reduce inflammation, including a wide variety of supplements and some foods, anything that helps nerve and brain health and regeneration, avoiding alcohol and sugar, a keto or high-fat diet for nerve health, paradoxically getting more sleep which is very hard to do, and dealing with the inevitable mental health issues caused by the despair and lack of sleep. Our best hopes long-term rely on eradication of viral reservoirs, reduction of resulting inflammation, nerve regeneration after that. No-one knows if there will be irreversible damage that causes the vibrations to continue since we've never gotten to the point where these other covid-related factors have been addressed.

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Replies to "For all those wondering if this could be related to COVID and/or the COVID vaccines/boosters -..."

Really interesting! Thank you for this info! I had been on mirtazipine for several months and that actually seemed to help. I have tried going off the mirtazipine to see if my body can rebalance. The side effects of the drug for me are difficult but compared to no sleep, anxiety, vibrations etc. they may be worth it. I’m going to try CBD during the day to see if that helps. My diet is pretty clean. Not keto, but very low sugar and supplements that support nerve/brain health. Interesting about the possible Covid connection. I never knowingly had Covid but did take 3 vaccines. I’m not anti-vax. However, I’m curious about that connection.
Hoping we can all heal from this!

I did not get the covid vaccines nor have I had covid. I have never had the flu shot nor have I ever had the flu. I had the strange smell issues also( men's cheap cologne) but attributed it to severe sinusitis (requiring antibiotics) and the xanax withdrawal. I'm having mild laundry detergent smells now but I've also cut down on the xanax so it could be a sort of mini withdrawal thing but I can live with this.

Coming to this late (new member) but can I just thank you for this most helpful and encouraging post. You've given me lots of ideas to try there. Much appreciated.