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Lobular Breast Cancer: Let's share and support each other

Breast Cancer | Last Active: Nov 12 5:54am | Replies (395)
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@selwena

Hi Lori, thank you so much for the warm welcome. I really wanted a forum to discuss.

I was diagnosed in November

3 weeks later had a bilateral mastectomy based on a biopsy of ILC (.5 cm on the right breast). Post mastectomy I learned that it was actually 1.5 cm with 1 node positive and no lymphovascular invasion, or no capsular invasion.

3 week after mastectomy I was started on CMF chemotherapy. I receive every two weeks given a dose dense regimen. The plan is to have radiation following this and hormone therapy and ovarian suppression.

I've received two doses of chemo, and I have six doses left.

The removed tumor was ER and PR + Her 2 -

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Replies to "Hi Lori, thank you so much for the warm welcome. I really wanted a forum to..."
Lori, Volunteer Mentor | @loribmt | Jan 10, 2023

We’re happy you found Connect! This is a very welcoming forum and you’ll feel like you’re sitting around the kitchen table with old friends…all with on the same medical journey. From my experience it helps to know you’re not alone. I don’t have breast cancer but there are so many strong, courageous and amazing women here who will be able to offer encouragement and answer questions for you.

@windyshores @elliej @anjalima @callalloo and several other members are active in the discussion link below. Feel free to pop into any conversation!

-Invasive ductal cancer
https://connect.mayoclinic.org/discussion/invasive-duct-ca/
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@beautybldr has the same diagnosis and posted this discussion in August.

-HER2- and ER/PR+
https://connect.mayoclinic.org/discussion/her2-and-erpr/
How are you doing on the chemo? Any side effects such as sore mouth or nausea?

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ilcpfighter | @ilcpfightee | Jan 10, 2023

Hi Selwena,
Welcome but so sorry you had to join our club. I am currently in chemo too for a 1.96cm. Oncotype of 34 pleomorphic ILC. My chemo stated as TC but I had a toxic reaction and was switched to CMF. It isn't as common a regimen so if you don't mind me asking, have you had any side effects to CMF? I had one dose and they paused me because the damage from my toxicity to TC flared bad. I get my second dose dense treatment next week. Do you get neulesta with each cycle? How are you doing? It is so overwhelming at times. Hugs!!!!

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