← Return to Long haul Covid tremors and muscle spasms

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@vjpwatson

Wow. This was very enlightening for me finding this thread. I have had all these symptoms and including periodic lymph node swelling in my armpits and have been to multiple doctors and a neurologist (who told me it was anxiety) but confirmed my mild neuropathy with an EMG and told me he could redo the test in 6-12 months if it gets worse. All of the doctors were aware of the Covid-19 infection proximity to my initial neuropathy symptom onset (2 weeks after infection, the muscle twitching didn't start until about 5 months after) and they pretty much all discounted it being related to covid. Except one Functional medicine practitioner I see thinks it could be related but maybe reactivation of EBV or Lyme. Neurologist initially scoffed at the relation to covid "because both he and his wife had covid" and apparently neither of them had any strange symptoms after. Fucntional medicine practitioner is now going to have me try mild hyperbaric oxygen therapy so I am slightly hopefully optimistic again. At least someone is trying to listen to me and trying to help.
Anyway, I am looking forward to reading any updates from people on here if they have things they tried that helped (I guess it is helpful to hear the things that didn't help as well). And I guess at least I know I am not alone or crazy for making this association.

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Replies to "Wow. This was very enlightening for me finding this thread. I have had all these symptoms..."

I went to see a functional/integrative med person and they did a barrage of tests on me, and said it's long covid. I am now taking a ton of supplements, and low dose naltrexone. I am about to add Ivermectin to the mix tomorrow. Keeping my fingers crossed. My tremors didn't start until about 5 months after my nov/dec 2019 covid infection. That was the sickest I have ever been in my entire life. It's important we understand that the symptoms will be different for everyone depending on per existing predispositions and injuries. At least that is what I understand about COVID. Not everyone gets neurological issues, and not everyone gets the malaise ... it's individual.

Not alone. I am considering doing EBOO. It is a process of cleaning and oxygenating the blood. Dr Volpp in Carlsbad California is the doctor. I find that exercising makes my tremors and fatigue worse. I also have had bouts of depression. Very strange. Stay strong. ❤️