Connect
← Return to Polycythemia Vera: Just been diagnosed
Discussion
Polycythemia Vera: Just been diagnosed
Blood Cancers & Disorders | Last Active: Aug 26 12:21pm | Replies (395)Comment receiving replies
My 67 yo husband recently diagnosed with pv (had biopsy). No history of thrombosis events. Phlebotomy plus aspirin lowered rbc and hematocrit 46 but platelets still 500. Because of age risk, Doc wants to start HU. Wondering if an interferon drug is ever used first instead of HU?? I’m worried about side effects. He’s very active outside and worried of skin cancer risks
Replies to "My 67 yo husband recently diagnosed with pv (had biopsy). No history of thrombosis events. Phlebotomy..."
Hello brooks7987, I have had PV w/JAK2 for over 5 years. I started on Hydroxurea almost immediately . I am also very active outdoors and had to change some habits, sunscreen, hats, UV shirts (even in water activities) all help. I had no problems and had twice yearly checkups with dermatolgist. I have recently replaced Hydroxurea with Jakafi. Hydroxurea did sap my energy level and the switch helps.
Connect
Hi @brooks7987, welcome. I moved your question about HU (hydroxyurea) and interferon to this existing discussion:
- Polycythemia Vera: Just been diagnosed https://connect.mayoclinic.org/discussion/polycythemia-vera-1/
I did this so you can read past posts and connect easily with fellow PV members like @lindaw123 @kibbykyle @learnandlive @randles14.
You may also be interested in these related discussions:
- How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET? https://connect.mayoclinic.org/discussion/side-effects-of-hydroxyurea-et/
- When is hydroxurea usually added to treat polycythemia vera (PV)? https://connect.mayoclinic.org/discussion/hydroxurea/
Have you discussed your concerns about skin cancer risk and your husband's active outdoor lifestyle with his doctor?