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CAR-T Cell Therapy: Introduce yourself and connect with othersCAR-T Cell Therapy | Last Active: 5 days ago | Replies (173)
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Replies to "Hello @myelomawarrior, welcome to Mayo Clinic connect, I hope there is a member on connect that..."
Thank you so much for your reply @grandpabob. It’s been a long road and hearing from someone who has been through it and had the same symptoms makes me feel so much better. I’ve done so much reading as has my husband about all of this but I’m sure you can understand the fear of it being more than just side effects. I’ve been taking some meds for pain and using topical but am hoping it will subside soon. If you don’t mind me asking, how long did you have the joint pain/weakness? Mine is mostly in my shoulders and my legs.
I plan to start PT soon if I can get approved for it and was thinking of trying acupuncture.
How did the car-t go for you? Did you get a good response?