Hello @barman and welcome to Mayo Connect. You are wise to be looking for answers for liposarcoma. I would encourage you to look for a well-known cancer center in your area. If there is not one nearby, check and see if there is one where you can get a virtual consultation.

Mayo Clinic has three campuses in Minnesota, Florida and Arizona. If you want to see about an appointment, here is link you can use, http://mayocl.in/1mtmR63.

If you are not close to a Mayo facility, you might check out university medical schools in your area. These facilities tend to be research-oriented and thereby have the latest treatments for hard-to-treat health issues.

Finally, the American Cancer Society might be able to refer you to a liposarcoma specialist in your area. Here is a link to their website https://www.cancer.org/.

Have you considered a second opinion?

Hello @barman I am a five year survivor of high grade dedifferentiated liposarcoma. Needless to say this is a hell of an ordeal. May we (collectively) ask where it is that you reside currently? My diagnosis followed a biopsy and then 4 weeks of radiation followed by surgery 3 weeks later. In my case it was determined that there wasn't a chemotherapy that would be helpful but that was 5 years ago and there are some great advances that have been achieved in the interim. I agree with the group that you would greatly benefit from a high level sarcoma center at this stage and Mayo Clinic is at the top along with a few others.

So and update in my case.. they recently found out that it was a high grade, grade 3 tumor of dedifferentiated liposarcoma. The surrounding mass was found out to be grade 2.