1. < Digestive Health

PPI Pantoprozole: Can't tolerate side effects with Stomach Ulcer

Posted by bosco17 @bosco17, Jan 6, 2023

Anybody taking this medication and experiencing side effects: INSOMNIA, depression, joint pain, ANXIETY, tingling nerves, dry mouth, fatique, excessive urination, heart pressure or palpatations, scatchy throat, etc, etc,. This is a nightmare!! What side effects are you experiencing and how do you handle it?????

Interested in more discussions like this? Go to the Digestive Health Support Group.

rozy288 | @rozy288 | Jan 8, 2023
In reply to @cblue "No, sorry , I never heard of that. What are your symptoms? I was referring to..." + (show)
@cblue

No, sorry , I never heard of that. What are your symptoms? I was referring to surgery called fundoplication… in a support group , I hear ( mostly, but not only) bad news about successful cases of this surgery. I would love to know if there is unbiased data on the success rate and how common complications are… especially in populations over 65.. but at some point I may have to decide on the best surgeon & go forward. Mayo ( at least in one location) is not even taking names for a waiting list.

Jump to this post

I was on waitlist for 4 months then it took 3 more months to get appt then a month to get into Mayo Clinic Jacksonville. They picked my Gastro for me . Had 3 tests done in 3 days . Cost a lot of $$$ in out of pocket and cost $900 to stay 3 nights up there . Same diagnosis I had prior . So Dr. Didn’t know what to do for me .
That surgery def had pros and cons . I can’t do that surgery. Good luck to you !!

REPLY
1 reply
cblue | @cblue | Jan 8, 2023
In reply to @rozy288 "I was on waitlist for 4 months then it took 3 more months to get appt..." + (show)
@rozy288

I was on waitlist for 4 months then it took 3 more months to get appt then a month to get into Mayo Clinic Jacksonville. They picked my Gastro for me . Had 3 tests done in 3 days . Cost a lot of $$$ in out of pocket and cost $900 to stay 3 nights up there . Same diagnosis I had prior . So Dr. Didn’t know what to do for me .
That surgery def had pros and cons . I can’t do that surgery. Good luck to you !!

Jump to this post

Not sure I fully understand but sorry sounds tough. Right now Jacksonville wasn’t even taking a waiting list for me unless I got a phone incorrect answer.

REPLY
1 reply
riflemanz64 | @riflemanz64 | Jan 8, 2023
In reply to @rozy288 "PPI ‘s are only meant for short term use , a few weeks or a couple..." + (show)
@rozy288

PPI ‘s are only meant for short term use , a few weeks or a couple months . Dr’s keep prescribing for years though .
You can google it .

Jump to this post

So what do I take to clear up my chronic gastritis?
I’m going to ask my doctor about this.

REPLY
1 reply
jerrysgirl3 | @jerrysgirl3 | Jan 9, 2023
In reply to @riflemanz64 "I take 40mg 1/2 hr before supper and the only side effect I get is muscle..." + (show)
@riflemanz64

I take 40mg 1/2 hr before supper and the only side effect I get is muscle cramps in my calf of the leg. I've been on it for about 5 years. I get scoped this year so I hope I have no issues.

Jump to this post

Maybe try magnesium supplements or rub in magnesium cream. Works wonders for cramping !!

REPLY
tk1 | @tk1 | Jan 9, 2023

Hi Bosch 17.
I am sorry you are experiencing the symptom. Unfortunately I am as well. I am on 40 mg and have all the side effects you mention. I am on day 11 of a 30 day course . I had a cholecystectomy 5 weeks ago and have been in agony with Epigastric and abdominal pain since.
I agree with whoever said the PPI,s are for short term use, and I am very frightened that my symptoms are not relieved completely by the PPI’s.
I am wondering if anyone tried lecithin and or slippery elm for your gastric symptoms or naturopathy?

REPLY
1 reply
bosco17 | @bosco17 | Jan 10, 2023
In reply to @tk1 "Hi Bosch 17. I am sorry you are experiencing the symptom. Unfortunately I am as well...." + (show)
@tk1

Hi Bosch 17.
I am sorry you are experiencing the symptom. Unfortunately I am as well. I am on 40 mg and have all the side effects you mention. I am on day 11 of a 30 day course . I had a cholecystectomy 5 weeks ago and have been in agony with Epigastric and abdominal pain since.
I agree with whoever said the PPI,s are for short term use, and I am very frightened that my symptoms are not relieved completely by the PPI’s.
I am wondering if anyone tried lecithin and or slippery elm for your gastric symptoms or naturopathy?

Jump to this post

Look at DGL, but check with your Drs first!!!!!!!!!!!!!!!!!! ,someone mentioned that to me once>

REPLY
rozy288 | @rozy288 | Jan 10, 2023
In reply to @cblue "Not sure I fully understand but sorry sounds tough. Right now Jacksonville wasn’t even taking a..." + (show)
@cblue

Not sure I fully understand but sorry sounds tough. Right now Jacksonville wasn’t even taking a waiting list for me unless I got a phone incorrect answer.

Jump to this post

Keep calling Mayo Clinic Jacksonville to get on waitlist. Took me a long time then waitlist a long time , then 3 more months to get appt . 7 months total .
I went 3 days testing out patient and Dr. Was no better than previous Gastro Dr’s . I’m a medical mystery for 9 years. It’s horrendous!

REPLY
1 reply
bosco17 | @bosco17 | Jan 18, 2023

Cant tolerate PPIs OR Pepcid AC with Stomach Ulcer
PPIs have serious side effects( Anxiety, tendon and joint pain, neurothapy, depression,INSOMNIA, nightsweats etc, etc) but nobody seems to recognize this!!!
How do you treat a Stomach Ulcer when you cant tolerate these medications??? Any Advice. HELP Im at the end of my rope!!

REPLY
2 replies
johnbluffside | @johnbluffside | Jan 19, 2023
In reply to @bosco17 "Cant tolerate PPIs OR Pepcid AC with Stomach Ulcer PPIs have serious side effects( Anxiety, tendon..." + (show)
@bosco17

Cant tolerate PPIs OR Pepcid AC with Stomach Ulcer
PPIs have serious side effects( Anxiety, tendon and joint pain, neurothapy, depression,INSOMNIA, nightsweats etc, etc) but nobody seems to recognize this!!!
How do you treat a Stomach Ulcer when you cant tolerate these medications??? Any Advice. HELP Im at the end of my rope!!

Jump to this post

I agree totally went thru that
Horrific side effects

Treat the best you can diet and excersise, yoga, walking , hypnotherapy

REPLY
View MoreView Less
Please sign in or register to post a reply.