Mesenteric Panniculitis or Sclerosing Mesenteritis

Can MP cause inflammation in other places besides you abdomen and colon area? Can MP make GERD or acid reflex worse?

Trial, elimination and error have proven successful over a long period! No corn or onions in any form, (which means no processed foods) nothing spicy, no seafood or fish, mustard, pumpkin or milk. No additives or preservatives or chemical flavourings/sweeteners. Other foods periodically bother me but those are the big ones. Pretty basic eating. I don't eat out often!! But I still manage to upset this system daily! Life in moderation is the rule! I eat gravol a great deal-never leave home without it! Lol
Fishing is great, hunting as well! Summer is short. This year we have Fall-some years there's a day between summer and winter! All good-LOVE living here!! And you @vdouglas what about what diet works for you?

Eating small portions as it seems to take much longer for my food to digest and could cause an uncomfortable evening of bloating and intestinal distress the following day. I try to stay away from spicy as well and no onions especially raw. Raw onions will cause distress almost for certain. Although I am asymptomatic I can have pain and other issues just like anyone else. It's just not going to send me to the doctor or ER. Eating food that keeps me regular is most important.
I also agree with your earlier comment regarding reducing stress. I find stress causes me to tighten up especially in the belly. This causes a change in breathing and digestion. I usually feel the best in the mornings when I'm more relaxed then have more difficulty in the evenings when I'm tired and stressed. Fishing is great for reducing stress. I love to fish a creek
I have never tried Gravol which is Dramamine in the US? Do you use it for nausea/upset stomach?
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Hello @carbxbe8206, Welcome back!.
I am sure, not professionally, that MP can make GERD or reflux worse. MP adds stress to your body physically, mentally and emotionally. I have reflux and use Omeprazole on occasion to resolve it.

I have had pain in the back, flank area under the right rib and the same on the left side. The pain will move around to the belly area and the lower belly area. I have had these pains both mild and so sever as to cause nausea and vomiting even with pain medication. I have read a lot of cases where MP was found after an individual went to ER for flank pain.

The inflammation can cause lymph nodes to swell and I suppose that could also cause pain elsewhere. Please see signs and symptoms in this link, https://rarediseases.org/rare-diseases/mesenteric-panniculitis/

How are you doing lately?

Hi there, for those that know me, I stress the fact that I have had gerd for 11 years (and still MP), but I cured my gerd with supplements and diet. Just look up Chris Kresser and see his suggestions for supplements and diet. I can now drink coffee, eat acidic food, and not get gerd. Pretty crazy given I was taking proton pump inhibitors for years and 600 mg of Zantac daily. Diet (autoimmune protocol) really helps me with bloat. Good luck.

Douglas, Thank you for the response trying to get into my GI doctor. The last few day have been very rough for me severe nerve pain all over and digestive issues. Can't take steroids afraid they will activate my Valley Fever, maybe I will have to make a choice on which is worse? I seem to contact all the rare crazy diseases. Taking one day at a time, and keeping a positive outlook. Have been going to Stanford Medical may have to switch to Mayo if my insurance will cover it? Have a great night!

Doran,
Thanks for the information I will check into that after my GI appointment.

Morning @vdouglas! Gravol is Dimenhydrinate in 100mg tablets. I need to take it with just a hint of not feeling well-just over the counter here in Canada. Also use migraine meds Montelukast and Sumatriptan because headaches turn into full blown problems very quickly. I agree with you-best in the am and as the day moves on I slow down. I was a Teacher working with the most difficult and -even though I loved it all-it was extremely taxing. I have much less stress now retired! But like most teachers I still fill my day quickly with volunteer work and fun stuff! I try to juggle the balance between challenges and quietness! I try not to extend commitments into evenings. Keep enjoying your fishing!! That pic is from my front deck-I use Nsture as a crutch most days!☺️Travelling when it's very cold helps still. (And it can be -50 here in Dec/Jan!) Do others in your family have auto immune issues?

Morning @pcfromfm, I can smell the morning breeze from your porch coming over the river that flows north.
It's a good persons that does volunteer work, I commend you for that, we need more like you in the world. You have a great balance in your life that is working well for you. It is an inspiration to each of us trying to find that balance. I am an adventurous type but I don't know if I am tough enough for -50 celcius? ow! The folks in Minnesota can relate to the cold but Las Vegas only get down to about 26 F maximum.
Keep us posted, there are others in the background reading your comments, they are inspirational.
Your response to some of the others has been good, I'm sure they benefit from them as I do.
@vdouglas

Hello @carbxbe8206, sorry this took so long. I had a response typed out then opened another page and lost it all, Yikes!!
I can really sense your pain and frustration in your comments. Please have hope that the days to come will be better. Yes you do need to see your GI so that you may receive some relief from your symptoms.

I was given Naproxen along with Hydrocodone when I was experiencing bad symptoms of pain. When the hydrocodone ran out they would only prescribe Naproxen without a visit which I couldn't get for months. I kind of laughed at being prescribed what I considered Aspirin but it actually seemed to work after a couple of days. I believe the anti inflammatory properties are what helped. I would only recommend taking it with a doctors prescription and supervision as it does have some side effects. If you are currently using an Opioid pain med keep in mind it can cause bowel issues. I have not have not heard anyone mention this but although great for surviving pain Opioids will, over time, cause bowel issues which will cause pain in your intestines. There has to be some balance to overcome this, possibly with diet but certainly a GI doctor should be able to address it.

If you make it to the Mayo, and I understand all the obstacles, it will be worth the trouble and expense. You need to know which illness is causing the symptoms. They will be able to determine the progression of the MP. They have seen many images and know how to interpret them. Although treatment is limited at least you will know where to go from that point. They will send your GI a letter describing their findings and what to expect. You are not required to have a referral but it would be best to have one.

I would be glad to guide you through this if you decide to go.
You will be included in my Prayers
@vdouglas