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Mesenteric Panniculitis or Sclerosing Mesenteritis

Digestive Health | Last Active: Feb 6 6:57am | Replies (1506)

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@carbxbe8206

Can MP cause inflammation in other places besides you abdomen and colon area? Can MP make GERD or acid reflex worse?

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Replies to "Can MP cause inflammation in other places besides you abdomen and colon area? Can MP make..."

Hello @carbxbe8206, Welcome back!.
I am sure, not professionally, that MP can make GERD or reflux worse. MP adds stress to your body physically, mentally and emotionally. I have reflux and use Omeprazole on occasion to resolve it.

I have had pain in the back, flank area under the right rib and the same on the left side. The pain will move around to the belly area and the lower belly area. I have had these pains both mild and so sever as to cause nausea and vomiting even with pain medication. I have read a lot of cases where MP was found after an individual went to ER for flank pain.

The inflammation can cause lymph nodes to swell and I suppose that could also cause pain elsewhere. Please see signs and symptoms in this link, https://rarediseases.org/rare-diseases/mesenteric-panniculitis/

How are you doing lately?

Douglas, Thank you for the response trying to get into my GI doctor. The last few day have been very rough for me severe nerve pain all over and digestive issues. Can't take steroids afraid they will activate my Valley Fever, maybe I will have to make a choice on which is worse? I seem to contact all the rare crazy diseases. Taking one day at a time, and keeping a positive outlook. Have been going to Stanford Medical may have to switch to Mayo if my insurance will cover it? Have a great night!

Hello @carbxbe8206, sorry this took so long. I had a response typed out then opened another page and lost it all, Yikes!!
I can really sense your pain and frustration in your comments. Please have hope that the days to come will be better. Yes you do need to see your GI so that you may receive some relief from your symptoms.

I was given Naproxen along with Hydrocodone when I was experiencing bad symptoms of pain. When the hydrocodone ran out they would only prescribe Naproxen without a visit which I couldn't get for months. I kind of laughed at being prescribed what I considered Aspirin but it actually seemed to work after a couple of days. I believe the anti inflammatory properties are what helped. I would only recommend taking it with a doctors prescription and supervision as it does have some side effects. If you are currently using an Opioid pain med keep in mind it can cause bowel issues. I have not have not heard anyone mention this but although great for surviving pain Opioids will, over time, cause bowel issues which will cause pain in your intestines. There has to be some balance to overcome this, possibly with diet but certainly a GI doctor should be able to address it.

If you make it to the Mayo, and I understand all the obstacles, it will be worth the trouble and expense. You need to know which illness is causing the symptoms. They will be able to determine the progression of the MP. They have seen many images and know how to interpret them. Although treatment is limited at least you will know where to go from that point. They will send your GI a letter describing their findings and what to expect. You are not required to have a referral but it would be best to have one.

I would be glad to guide you through this if you decide to go.
You will be included in my Prayers
@vdouglas

Douglas, Thank you for all your answers and offer to help guide me. Today has been a little better for me, I also appreciate your prayers. I tried Hydrocodone but didn't like the side effects, my son and his wife are nurses and say to stay away from it long term if possible. I currently take Tramadol as needed for pain it doesn't work as well as Hydrocodone but makes it manageable without some many side effects. Have a great weekend!

@carbxbe8206 - I agree. I am using Tramadol 50mg as needed for pain. My doctor has given approval to take it with Tylenol for a little better results.

Hi @carbxbe8206 – Do you know why they say to stay away from Hydrocodone long term? I've been taking Symax Duotab (extended release hydrocodone) nightly for about two years now. It is the only thing that allows me to sleep well through the night. My doctors have so far said that if it is working for me, then I should continue taking it. The only side effect I experience is blurry vision, which is an annoyance, but nothing serious.

David, Not sure we are talking about the same thing, I have never heard of Symax Duotab hydrocodone,I have heard of Symax Duotab Hyoscyamine. Hydrocodone is an opioid pain killer, Hyoscyamine is to treat GI issues? My son has said the same, he also said they do make an extended release hydrocodone but it is called Hysingla ER. Anyway my son said hydrocodone is addictive, long term use could cause organ damage, along with withdrawal symptoms, and don't use with breathing problems. Also causes Hard stools (constipation). Your doctors know best, it just wasn't for me. Glad you found something that works for you.

Hi @carbxbe8206, Sorry, you are right. I am thinking of hyoscyamine. I blame fuzzy brain this week. 🙂 Best.

Hello @carbxbe8206 , How have you been?
I hope you are continuing to feel better. The last time we corresponded you were feeling a little better.
It would be good to hear from you.
Best wishes,
@vdouglas
Von