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Blood Cancers & Disorders | Last Active: Oct 16 9:36am | Replies (142)
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Replies to "I am 64 living in Qld, Australia and was diagonised with E.T. over 12 years back...."
My platelet levels were 1,250,000 when I was first diagnosed. Took about 6 months of Hydrea to get them down and it has been a roller coaster with the needed steroid treatments at times for other conditions because the steroids make them go up and the Hydrea has to be adjusted. I have the best count I have had in a while, 388,000. My oncologist feels if I can keep them under 500 I am good. But it requires daily Hydrea to do this. If I don't take it, they go up.