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Essential thrombocythemia

Blood Cancers & Disorders | Last Active: Oct 16 9:36am | Replies (142)

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@teech64

I am 64 living in Qld, Australia and was diagonised with E.T. over 12 years back. Young 27 year old lady. May I ask what were your platelette levels please. Mine were very high when I was first diagonsed, over 900. Normal is between 150 - 450. I was told to take Hydria, which I did. 500 mg, taking 2 a day. I did this until my levels resided. This has taken over 12 years to finally today to be around 150 - 200 back to normal. I went below 100 at one point. My doctor suggested I needed a blood transfusion, due to low count, instead of a high one for all these years. Hydria is designed to lower your blood count. So I stopped takening Hydria for the first time in 12 years. I have now stopped takening these pills and my count has slowly rising again, so I will have take Hydria again when my levels rise over 450. From down under, please do not be concerned with this drug, Hydria. It has side effects. Very small and wishing for a baby, ask your doc. I am sure all will be cool and ok. Hang in there dear. I am confident now my life is changing for the best.

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Replies to "I am 64 living in Qld, Australia and was diagonised with E.T. over 12 years back...."

My platelet levels were 1,250,000 when I was first diagnosed. Took about 6 months of Hydrea to get them down and it has been a roller coaster with the needed steroid treatments at times for other conditions because the steroids make them go up and the Hydrea has to be adjusted. I have the best count I have had in a while, 388,000. My oncologist feels if I can keep them under 500 I am good. But it requires daily Hydrea to do this. If I don't take it, they go up.