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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Sep 19 12:31pm | Replies (818)

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@raye

Thanks for your response and this conversation, @tallyteresa. My hgb and hct have both tended on the high side of normal. If I do not drink enough water or ginger tea both can go above normal and when both are elevated that high combo gets a new dx name: ERYTHROCITOSIS. I'm due to check my colon. Since I have obstructive sleep apnea and faithfully use an Apap, I do not do colonoscopies. I would, but twice when I had a colonoscopy the anesthesiologists were too arrogant to use my CPAP during the procedure.

Don't worry, if anything happens I'll be here! They apparently refuse to understand that using a pap prevents anything from happening.The American Sleep Apnea Association advises people with sleep apnea to take their AUTOPap or CPAP apparatus with them for procedures. They can not work if anesthesiologists refuse to use them. Instead I will cease any vitamin C, (no Preservision) then do three fecal smear card tests, then an Exact Sciences Cologuard test will be ordered by my PCP. It's been three years since the last one so Medicare will pay for it. I live in Los Angeles and had hoped to drive to the Arizona Mayo Clinic. Mayo insisted I go to Rochester, MN instead. I completely followed their guidance, right down to paying $25 extra for their travel guide's recommendations. Which hotel, even to stay on a concierge floor. Excellent! Though I was there alone (already having been a past caregiver for both parents and husband while their lives ended) dining in the small dining room with interesting others meant I never felt lonely. An extra Bonus was that when I needed to stay longer Mayo covered the extra charge to change Delta flights. I loved being there; exploring their fabulous art collection was a joy around every corner. During my week and a half was time to take in a nearby concert as well as other events: in short be an exploring tourist in the community. People in real winter areas live differently than Californians. Especially in December. Going to Mayo Clinic became a vacation with medical benefits. Were it not for ongoing Covid sequestration I would have already returned. You've given me more to google: full iron panel or anemia panel. Thank you!  Already googled your Dr. A. Hope your colon splenic flexure and calcium situations will normalize. Thanks again!

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