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I have MGUS

Blood Cancers & Disorders | Last Active: Apr 14, 2023 | Replies (56)

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@roseyd

I last saw him in 10/22 and at that time I thought I was only being treated for low ferritin. He never mentioned any other results from my labs. That was why I was so surprised to see the diagnosis and am just learning about it online.

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Replies to "I last saw him in 10/22 and at that time I thought I was only being..."

@roseyd As @colleenyoung mentioned, I have CKD [Chronic Kidney Disease], now Stsge 5 and am on dialysis. Diagnosed with MGUS in 2017, I am an overachiever and have progressed rapidly from MGUS to active multiple myeloma. That runs contrary to what almost everyone else experiences, as far as progression beyond MGUS. The very biggest majority of patients go ffor many years without major progression to the next stage. And as you may have read, MGUS is often found when the medical team is looking at something else!

Making sure your nephrologist, oncologist, and primary care doctors are all in communication with each other is so important! You are the hub of the wheel of care, and they are the spokes. Neither can work well without the other. Take time to write down questions about your particular case, your care plan, and how to be the best patient you can be, before your next appointments. Don't be afraid to ask questions of them!

Is there anything I answer for you? How do you plan to relax this weekend and understand that you need to be able to relax and not let these diagnosis consume your mind!
Ginger