CLL leukemia: Just diagnosed, what can be done?

Posted by kegraves @kegraves, Jun 6, 2022

Husband 84 just diagnosed with CLL,
Is this common in older people and what things are done to stop from progressing?? We are new to this site and this diagnosis..

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@valeriewiegand

take it every day-doc did not recommend

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liver enzymes normal -bloodwork today wbc 34000-reached a high of 49000 3 years ago-7 years later-all other blood work excellent-please tell your doctors!!!!!!!!!!!! green tea extract kills cll!!!!!!!!!!!

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@kellim

I worked liver transplant and milk thistle is dangerous for your liver can cause damage.

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who are you that you worked liver transplant ?

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@kellim

I worked liver transplant and milk thistle is dangerous for your liver can cause damage.

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what do you mean by "i worked liver transplant "-where do you work ?

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@valeriewiegand

what do you mean by "i worked liver transplant "-where do you work ?

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At UofM Liver and Kidney transplant

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@valeriewiegand

liver enzymes normal -bloodwork today wbc 34000-reached a high of 49000 3 years ago-7 years later-all other blood work excellent-please tell your doctors!!!!!!!!!!!! green tea extract kills cll!!!!!!!!!!!

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Thanks for sharing this wonderful news. How much green tea extract and for how long did you take it? Would you mind sharing the brand and the amounts that you took? This is very helpful for the rest of us.

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@justinesmith

Thanks for sharing this wonderful news. How much green tea extract and for how long did you take it? Would you mind sharing the brand and the amounts that you took? This is very helpful for the rest of us.

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hi-
i started taking the green tea extract in june of 2016, after being diagnosed in april of that year- brand is ZenWise 725 mg,50% is EGCG ,which is 360 mg-i took between 20 and 30 capsules a day-7-10,000 mg. i now take approximately 5,000 mg per day . and this seems to be working to keep everything stable. hope this helps.
best to all,valerie

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@valeriewiegand

hi-
i started taking the green tea extract in june of 2016, after being diagnosed in april of that year- brand is ZenWise 725 mg,50% is EGCG ,which is 360 mg-i took between 20 and 30 capsules a day-7-10,000 mg. i now take approximately 5,000 mg per day . and this seems to be working to keep everything stable. hope this helps.
best to all,valerie

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. thanks I will look into it, hoping to find an uncaffinated brand . Did you get your liver enzymes tested? A few people in the Mayo study dropped out due to elevated liver enzymes.

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liver enzymes normal on -visit with oncologist 01/03/2023. also take 50000 mg milk thistle daily-1 very strong vodka and soda every night- zenwise very low on caffeine. keep in touch-and thanks

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Im new to the group and just diagnosed about 2 weeks ago. I was caught completely off guard and didnt even ask any questions. I go back in a couple weeks for results on the last blood tests. Ill see where it goes from there. And I have lots of questions this time.

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Definitely check out cllsociety.org website, join one of their regional support groups (now done via Zoom), and consult with a CLL EXPERT (not a generalist) at a cancer center like Mayo even if you are using a local hematologist/oncologist.

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