Ear Tinnitus and Pain with Neuropathy

Posted by cwallen9 @cwallen9, Jan 29, 2019

Does anyone have severe tinnitus and ear pain with their neuropathy? I have small fiber and autonomic neuropathy and I have been getting severe tinnitus (roaring and high pitch noise) and a feeling of pressure and pain for the last month. I am wondering if the neuropathy and/or medications are causing it. I am on gabopentin, cymbalta, and NSAIDS.

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Valerie | @lacy2 | Jan 2, 2023

In reply to @danye1 "I have Tinnitus, too, and have learned that opioids, many antidepressants and even some blood pressure..." + (show)

,... i agree but when we "have no choice' than to take them.... it's very stressful to say the least ; and now i have musical ear , never heard of it before, doesnt hurt but feels lost control of body,,.. waiting to talk to an audiologist in a month but no cure in sight just cbt,,

hawkssr | @hawkssr | Jan 7, 2023

Also have had tinnitus for over 30 years. When first diagnosed the doc said no cure and either get use to it or wind up on psych ward. Rather blunt but I guess it’s true. About 10 years after diagnosis I developed Menieres and have lost hearing from the attacks. Fortunately the attacks are not often but I’m down and out for about 24 hours when they occur. It’s funny because my hearing has been affected yet I can’t stand anything too loud as it just ramps up my tinnitus. I also try and keep the salt limited as I do have high blood pressure and am on medication. Always interested in anything that’s conservative that has helped others with tinnitus and Menieres.

gbny1224 | @gbny1224 | Jan 30, 2023

In reply to @gator123 "Gabapentin will do it I was in the hospital one time I already have tinnitus with..." + (show)

How bad is your leg pain ? Mines severe about 12 hrs a day then I get a few 15 min flare ups that I moan and cry .

Valerie | @lacy2 | Jan 31, 2023

In reply to @hawkssr "Also have had tinnitus for over 30 years. When first diagnosed the doc said no cure..." + (show)

... i have moderate hearing loss, no hearing aids, as also have, if spelled correctly, "hytperacusis" so cannot hear all my spouse says when standing ten feet away but can hear him downstairs taking temperature and the tiny beep! Also have "musical ear" is not psychological but again something with brain/ear and seems 2 types: one you hear music or singing or whatever sounds like someone has radio on in background but doesn't; 2nd type apparently when a noise, like our heating furnace fan, turns on, it provokes the music.... and its as if the music is in beat with the churning of the furnace, or snow blower or such - its soooo complicated. Also have pressure and pain in ears but ent said no tubes for you! Maybe could cope better if I didn't have other illnesses, and as I type this left ear has tinnitus and right ear some repetitive music.... not painful but unsettling! Also sometimes here sort of chanting or fast speaking.... I thought was a mental health thing but it isn't... it's not like when a favourite song is on your mind - they call it music worm or something - but actually feel you can hear it. Not sure if I have Menieres as have face pain on and off and wobbly but not dizzy and no doctor, only a nurse practitioner and no ent.. so on my own to fiture out and cope with: next week appointment with super specialist first one, but she already told me cannot cure but learn to live with it - I hope! Sympathize with you! J.

dancesun | @dancesun | Feb 1, 2023

Is a MRI MRA MRV one test, or three separate. Doctor just ordered me to take. Want to find out about before putting the head under -- Gosh i have had so many mris. //d

John, Volunteer Mentor | @johnbishop | Feb 1, 2023

In reply to @dancesun "Is a MRI MRA MRV one test, or three separate. Doctor just ordered me to take...." + (show)

Hi @dancesun, Here is some information on the tests.

"MRI MRA MRV
Magnetic resonance imaging (MRI), magnetic resonance angiography (MRA), and magnetic resonance venography (MRV) are specialized examinations that use a magnetic field, radio waves, and a computer to create detailed, cross-sectional images of the head."
-- MRI, MRA and MRV of the Head
https://aboutimi.com/procedures/mri/mri-mra-and-mrv-of-the-head/

dancesun | @dancesun | Feb 1, 2023

Yes the doctors office got back to me too. Thank you. They said they can do it all in one, visit. Its only, from what I understand so far, one injection. Still researching before I actually do it. SO MANY MRIS. that will be three since beginning of year. ug. Little scary that!

Nazir Khan | @nukhan | Feb 1, 2023

In reply to @dancesun "Yes the doctors office got back to me too. Thank you. They said they can do..." + (show)

Try to avoid gadolinium contrast MRI which I understand is causing neuropathy similar to what fluoroquinolones and ciprofloxacin do.

rubethedogman | @rubethedogman | Feb 2, 2023

Tinnitus and neuropathy are common symptoms of fluoroquinolone antibiotic toxicity. So many of us have it and were damaged by these drugs. However, doctors don't know how to diagnose it and the patient is left with no answer for their symptoms.