@sharing I can understand your frustration, and welcome you to Mayo Clinic Connect. Here, we have a unique opportunity to share with others in our similar situations.
Like you, I live with some autoimmune conditions. In fact, my ultra-rare kidney disease that for several years was chalked up to a symptom of Systemic Lupus [diagnosed in 1988!], is actually an autoimmune disease.
Often I have compared my body to having its own private civil war with everything that is going on, and often the symptoms seem to cross over each other! That's the thing with different conditions. They may mimic others, and unless presented with clear and convincing evidence, most doctors won't go to the expense and time to get an accurate diagnosis. Add in to the mix when our symptoms are inconsistent, and well, hopefully you can see the dilemma we all face, doctors and patients alike.
Live each day to the best we can. Take care of yourself the best you can, and be aware what will work for you that day may not work another day. We are each individuals, and miracle machines no matter. What are you doing today to have a "good" day?
Ginger
Hi! I am wondering if anyone has had what I have had?
I only know that at age 30, in the perineum area, I was diagnosed with a “rare form of skin cancer”. The gynecologist cut out a patch of skin about the size of a quarter, said it could come back. “Carcinoma not otherwise specified”.
It did come back 30 years later and the gynecologist missed it but his ARNP pointed it out and it was removed without general surgery.
How frequent is this?
Sharon Braido
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