1. < Pancreatic Cancer

Distal pancreactomy with shrinking cyst

Posted by sushie @sushie, Oct 16, 2022

Hello
I am 36 yrs women, detected with a 5.8 cm cyst on the tail of my pancreas on Aug 16 and had acute pancreatitis. 2- weeks after which I became normal with no pain or complications. In the followup with EUS-FNA it came to be non malignant cystic neoplasm with extensive necrosis in tail. On followup with Mayo Clinic doc they prescribed me for a MRI. Results came on Oct 14 showing 3.5 cm size and slight ductal increase. The doctor suspects it’s a mucinous cystic adenoma and suggested for a distal pancreactomy, splenectomy and removal of gall bladder. I am wondering since the cyst decreased by 2.3 cm in 2 months in its own is it worth waiting for another 3-6 months to see its status and then thinking of surgery. Did anyone run into similar situation like me?

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sushie | @sushie | Jan 6, 2023
In reply to @mikewdby "Can you please share where your surgery took place? Thanks" + (show)
@mikewdby

Can you please share where your surgery took place? Thanks

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Eisenberg building, Mayo Clinic, MN

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Sherry | @skkirby | Jan 6, 2023
In reply to @outlawcancer "Hello I am 44 y/o male and I was diagnosed with a PNET about 2 months..." + (show)
@outlawcancer

Hello I am 44 y/o male and I was diagnosed with a PNET about 2 months ago. It is located on the tail of the pancreas. I am scheduled to have surgery next week to have a distal pancrectomy and splenectomy. Of course I am terrified. Can you tell me how your surgery went? What I should expect? My Dr’s have given information but it’s best coming from someone who has actually experienced the procedure. I am aware everyone’s recovery is different. And by the way the dr did tell me that about 40% of patients after surgery and removal of the drainage tube will afterwards experience drainage. She called it “pancreatic juices.” Any info will help thank you.

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Hi there-

I totally agreed with @sushie's reply. My pNET was located in the head/neck junction of the pancreas. But my recovery was the same as Sushie's. The only difference for me was that I had trouble "waking up" my bladder/bowel functions for about 10 days after surgery. Small concern though compared to the pNET tumor. I also had the drain and mine was removed on day 3. It's not horrible, just annoying. The nurses will measure the output and when it decreases, they can remove it. I am wishing you a speedy recovery! Please keep us posted. Above all, please stay encouraged and know that you have a nationwide support system of fellow pNET tumor patients at your fingertips if you have any questions.

Warmest Regards,
Sherry 🙂

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