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My Experience on Evenity for Treating Osteoporosis
Osteoporosis & Bone Health | Last Active: 1 day ago | Replies (1085)Comment receiving replies
Leslie, thank you, thank you, thank you.
I could see so clearly what was happing to my sister’s mental status and have not had anyone to talk to.
So glad I found this discussion. Have you found any information pertaining to women who believe they have had a mental status side effect? Where did you get the information that your mind would clear in one month?How do you report to Amgen?
Her last injection of a series of 12 was in Nov. and she is about the same. Her Dr. has advised her to see a neurologist but she has not follow through.
How do you report to Amgen?
You sound exactly like a R.N. As nurses, our families really do need us. Medicine today is so complicated.
Replies to "Leslie, thank you, thank you, thank you. I could see so clearly what was happing to..."
Hi, gost
I regret responding so late, but alot has been going on. I started Evenity in May 2022 and discontinued treatment October 2022. I had a number of side effects, but primarily fatigue, itching and brain fog. I had headaches of varying severity and muscle spasms . I would get spikes in blood pressure. I felt better after stopping the drug. I was then put on Alendronate 70mg once a week. Three days after the second dose I developed migraines with aura for the next two weeks. I have a history of these headaches, but only happens a couple of times a year, never daily. I was given a CT which did not reveal significant findings. I now have to see a neurologist. I have constant ringing in my ears. I never had that before Evenity ot Fosamax. I had hoped that following the medical protocols, I would make my health better, not worse. I called AMGEN at 1(800)772-6436 and filed an Averse Effect Report. I kept detailed records and gave the information to a nurse. She was very thorough. Be sure you have the Doctor's name ,address and phone. They ask for vial numbers and dates of injection as well. These companies need to know about any aftermarket problems. I don't know what I will do next. It depends on what the neurologist says. Right now I am just taking calcium, d3 etc. and exercising. Best wishes to all on this journey.
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So let me try to respond to your questions:
I could find nothing in the literature about mental status changes, but have read others who have, on here and also a Facebook support group for Evenity. There’s also one for Reclast I’m in that has been helpful to hear of more people’s experiences.
My endocrinologist had never heard of brain fog but admits she doesn’t have many patients on it.(Another doctor prescribed it as I moved from Dallas to Austin last spring).
I read about the pharmacology online that said the half-life is 12 days, and my doctor confirmed it is out of your system by the time the next injections are due.
So if your sister had her last ones at the end of November she could just have cleared it.
If you go to the Amgen/Evenity website there’s a place to report adverse reactions- interestingly, they hadn’t heard of anyone with changes in their mood or fog.
So, it’s a new drug and while most seem to tolerate it well, others don’t.