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Just diagnosed with invasive lobular carcinoma (ILC): Any advice?

Breast Cancer | Last Active: Sep 17 1:42pm | Replies (82)
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@nadejda

Hello everybody, I am 64, new to this group. Diagnosed with invasive lobular carcinoma 6mm 3 weeks ago. Next week will be my first appointment with oncologist. Could you, please, advise me what to ask?
How were your appointments, francinemoran?

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Replies to "Hello everybody, I am 64, new to this group. Diagnosed with invasive lobular carcinoma 6mm 3..."
queue555 | @queue555 | Jan 9, 2023

Is this ER or PR or HER 2?
Triple negative?

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momc | @momc | Jan 11, 2023

I wish I had asked everyone I initially saw in those early days to tell me what makes ILC different from the ductal type of breast cancer. I may have understood why a moderate sized tumor emerged from pathology almost tripled in size. I’m sure I would’ve had a greater appreciation for the additional tests and scans if I had had more data. Knowledge is your power but keep a very open mind throughout the process. I was positive that, due to a lung condition, I would not have radiation therapy. Well, I had 33 sessions but when your margins still have cancer cells and the radiation oncologist gives you great information it’s actually a no brainer.
I tried to step away from myself and consider the whole process as happening to someone else. You tend to get a totally different perspective. Hugs as you begin your journey. You have lots of caring companions.

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